European Deafblind Network

- Deafblind International (http://www.deafblindinternational.org/): is the world association promoting services for people who are deafblind.

- The World Confederation of Parents of Deafblind and Multidisabled with a Sensory Bases (http://www.wcpdb.org/): Organization representing all parents who defend the rights of their Deafblind and multi-disabled sons and daughters.

- European Platform of Deafness, Hard of Hearing andDeafblindness (http://epdhdb.eu/): The Platform has been formed to enhance, strengthen, and cultivate a robust and enduring collaboration between the European Cochlear Implant Users (EURO-CIU), the European Deafblind Network (EDbN), the European Federation of Hard of Hearing People (EFHOH), the European Federation of Parents of Hearing Impaired Children (FEPEDA), and the European Union of the Deaf (EUD), for the express purpose of benefiting Deaf people (including sign Language users), Hard of Hearing people, deafened people, and Deafblind people and their families regardless of the language, the communication system or the assistive technologies they use (hearing aids and cochlear implants)

- European Disability Formum (http://www.edf-feph.org/): Independent NGO that represents the interests of 80 million Europeans with disabilities. EDF is the only European platform run by persons with disabilities and their families.

APSOCECAT, Catalan Association pro Deafblind People, Catalonia – Spain
FESOCE, Spanish Federation of Deafblindness, Spain
Sense, The Deafblind and Rubella Association, UNITED KINGDOM
Sense Scotland, Scotland – United Kingdom
CRESAM, National Resource Centre, FRANCE
CDH, Centre for Deafblindness and Hearing Loss, Denmark
Royal Dutch Kentalis, THE NETHERLANDS
ÖHTB, Austrian Relief Organization for People who are Deafblind and People with Significant Vision and Hearing Impairments, Austria
SVOE, Hungarian Deafblind Association, Hungary
ZRaPHSD, Association of Parents and Friends of Deafblind Children, Slovakia
Sense International (Romania), Romania
Casa Pia de Lisboa, IP, Portugal
DODIR, Croatian Association of Deafblind Persons, Croatia
LASUC, Lithuanian Training Centre for the Blind and Visually Impaired, LITHUANIA
Finnish Deafblind Association, FINLAND
DLAN, Deafblind Association of Slovenia, Slovenia
Deaf People Association (Malta), Malta
NADbBg, National Association of the Deafblind in Bulgaria
TGP, Association for the Welfare of the Deafblind, Poland
Záblesk, Association of parents and friends of deafblind children, CZECH REPUBLIC
The Heliotrope, Greece
Stiftung St. Franziskus Heiligenbronn, Germany
TANNE, Swiss Centre of Competence for the Deafblind, SWITZERLAND
SNAB, Swiss National Association of and for the Blind, SWITZERLAND
Estonian Support Union of the Deafblind, ESTONIA
GÖYÇEM, Gazi University Research Centre for Children with Visual Impairments and/or Learning Disabilities, TURKEY
NVC, Nordic Centre for Welfare and Social Issues, SWEDEN
Lega del Filo d’Oro, ITALY

Jun 2014 - Feb 2015

None declared

EDbN is an umbrella organization that represent the interest of many European Deafblind organizations, which provide sources for any different project where EDbN is involved. In this regard, EDbN has not an own budget.

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EUROPEAN DAY OF PERSONS WITH DISABILITIES 2014
BRUSSELS, 2-3 DECEMBER 2014
European Conference on “The Implementation of Structural Funds” Athens 22 February 2014
European Conference on: "An Inclusive Digital Continent" Riga 21 February 2015

From mid-2014 and until March 2015, the main activities of EDbN met with 60 MEPs informing them about the results of the “European Deafblind Indicators” project. This project determines the situations of the deafblind people in Europe and is the first survey at this level. With the same idea EDbN met with vice-president of the EP Social Affairs Commission. As a result of this meetings, a number of these MEPs decide to support EDbN in order to ask for specific support to the European Commission. A meeting with Commissioner Thyssen was held and 2 contact persons were established in order to continue.
Until 2014, as part of it activities directed to the formulation or implementation of policy and the decision-making processes of the EU institutions, EDbN has formulated the following three questions to three different Members of the European Parliament:
-Eurostat office does not include specific statistics regarding disability or deafblindness in its public, and this is unhelpful for the formulation of social policies in these areas. Disability does not figure prominently in any Eurostat studies and in the few that refer indirectly to disability, there is no mention of contact with expert non-governmental organisations (…)
-Most of the Member States of EU do not have an official census of Deafblind people. In spite of the fact that 40 out of every 100 000 Europeans are Deafblind, only Denmark has a complete official census. The lack of a census condemns this group to invisibility and therefore to discrimination (…)
-The United States Federal Communications Commission (FCC) receives more than USD 10 million annually from the federal government in order to fund accessibility material for Deafblind people in who lack economic resources. Creating an equivalent line in the EU budget would not only greatly assist the many Deafblind people in the EU but also boost the accessibility material industry in the European Union (…)
EDbN will continue working in direction with the objective of improfing the situation of deafblind people in Europe, improving their qulity of life and achieving their equal rights and full participation in society.

1 meetings found. Download meetings

The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

• Date	03 Mar 2015	Location	Brussels
  Subject	Rights of people with disabilities in Europe
  Cabinet	Cabinet of Commissioner Marianne Thyssen
  Portfolio	Employment, Social Affairs, Skills and Labour Mobility
  Attending	Marianne Thyssen (Commissioner)