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Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2022 - Dec 2022
Lobbyists (Full time equivalent)
3 Fte (3)
Lobbyists with EP accreditation
3
High-level Commission meetings
2
Lobbying Costs over the years
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Info
European Deafblind Network (EDbN)
EU Transparency Register
494499948076-65 First registered on 10 Nov 2022
Goals / Remit
Llevar a cabo las campañas de concienciación necesarias para conseguir las misiones de la asociación a todos los niveles ejecutivos y administrativos europeos.
Dar soporte a los miembros de la asociación con campañas de reconocimiento de la sordoceguera en sus respectivos países. Este soporte podrá, por ejemplo, incluir asesoramiento y asistencia a reuniones pero en ningún caso incluirá soporte económico.
Organizar una red electrónica que permita compartir el conocimiento y la información en área de la sordoceguera a nivel europeo. Esta red se podrá utilizar para dar soporte a las finalidades de esta asociación.
Establecer y mantener relaciones con las instituciones europeas (Parlamento, Comisión y Consejo); consejos nacionales de personas con discapacidad, organizaciones no gubernamentales de personas con discapacidad a nivel europeo; con los organismos de Naciones Unidas, con organismos internacionales en Europa, etc.Main EU files targeted
- Directive (EU) 2019/882 of the European Parliament and of the Council of 17 April 2019 on the accessibility requirements for products and services
- Directive 2016/2102 of 26 October 2016 on the accessibility of the websites and mobile applications of public sector bodies
- Consult Council Directive 2000/78/EC of 27 November 2000 establishing a general framework for equal treatment in employment and occupation
- Ser parte de la futura instauración de la European Disability Card
- Directive 2011/24/EU on patients’ rights in cross-border healthcare
- Regulation (EU) 2021/817 of the European Parliament and of the Council of 20 May 2021 establishing Erasmus+: the Union Programme for education and training, youth and sport
- Regulation 883/2004 on the application of social security schemes to employed persons, to self-employed persons and to members of their families moving within the Community
- Directive (EU) 2016/2102 of the European Parliament and of the Council of 26 October 2016 on the accessibility of the websites and mobile applications of public sector bodiesAddress
Head Office
Carrer Leiva 2 D Baixos
Barcelona 08014
SPAINEU Office
Carrer Leiva 2 D Baixos
Barcelona 08014
SPAINWebsite
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People
Total lobbyists declared
3
Employment time Lobbyists 100% 3 Lobbyists (Full time equivalent)
3
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
3 accreditations were / are live (in bold) for the selected state of 29 Apr 2024
Name Start date End Date Daniela ANZE BERGMAN 07 Nov 2023 06 Nov 2024 Ricard Lopez Manzano 07 Nov 2023 06 Nov 2024 Agusti VILAR MARTINEZ 07 Nov 2023 06 Nov 2024 Ms Daniela ANZE BERGMAN 07 Nov 2023 15 Apr 2024 Mr Ricard LOPEZ MANZANO 07 Nov 2023 15 Apr 2024 Mr Agusti VILAR MARTINEZ 07 Nov 2023 15 Apr 2024 Ms Daniela ANZE BERGMAN 22 Nov 2022 07 Nov 2023 Mr Ricard LOPEZ MANZANO 19 Nov 2022 07 Nov 2023 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
European Disability Forum (https://www.edf-feph.org/)
Deafblind International (https://www.deafblindinternational.org/)Member organisations
None declared
-
Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2022 - Dec 2022
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
30,000€
Major funding types in closed year
Donations, Member's contribution, Grants
Major contributions in closed year
Type Name Amount Contribution APSOCECAT 16,140€ Other financial info
We are a network working with multiple organisations in Europe. Most contributions are in-kind and from volunteers.
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EU Structures
Groups (European Commission)
none
Groups (European Parliament)
Disability#Deafblind International
Sense InternationalCommunication activities
Actividades relativas a garantizar la accesibilidad de personas sordociegas y sus familiares.
Hemos participado en la European Accessibility Act
Actividad de comunicación para dar visibilidad a las personas sordociegas y sus necesidades.
Se han iniciado conversaciones con la Dirección General Emmanuelle Grange para un proyecto europeo de visibilización del bastón europeo blanco y rojo como indicativo de personas sordociegas.
Dos estudios que retratan la situación de la sordoceguera en Europa:
1. Deafblind monitoring (http://deafblindmonitoring.eu)
2. Deafblind indicators (https://deafblindindicators.eu)
Con la colaboración de la mayoría de los países europeos.
Un estudio que tiene como objetivo incluir la sordoceguera en la Clasificación Internacional de Funcionamiento para la discapacidad, un marco establecido por la OMS.Other activities
None declared
Meetings
Meetings
2 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 30 Nov 2023 Location Brussels Subject EDbNs concept for a European Monitoring Centre for deafblindness and the Commission’s ongoing implementation of the Strategy for the Rights of Persons with Disabilities. Cabinet Cabinet of Commissioner Helena Dalli Attending - Nora Bednarski (Cabinet member)
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Date 24 Nov 2022 Location Brussels Subject Discussed the role of technology, education and training and the importance of knowledge-sharing to ensure the independent living and full enjoyment of rights by persons who are deafblind. Cabinet Cabinet of Commissioner Helena Dalli Portfolio Equality Attending - Nora Bednarski (Cabinet member)