ABC Global Alliance

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2021
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Registration as it was on 12 Jun 2023
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Overview

Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

Lobbying Costs

None declared

Financial year: Jan 2022 - Dec 2022

Lobbyists (Full time equivalent)

0.25 Fte (1)

Lobbyists with EP accreditation

0

High-level Commission meetings

0

Lobbying Costs over the years

  • Info

    ABC Global Alliance

    EU Transparency Register

    470824037205-61 First registered on 03 Feb 2020

    Goals / Remit

    The ABC Global Alliance established in 2016 as an initiative of the European School of Oncology and now registered as a non-profit association in Portugal, is a multi-stakeholder platform for all those interested in collaborating on common projects relating to advanced breast cancer with the aim to improve and extend the lives of women and men living with advanced breast cancer in all countries worldwide and to fight for a cure.
    Our goal is also to raise awareness of advanced breast cancer and lobby worldwide for the improvement of the lives of advanced breast cancer patients.

    Main EU files targeted

    Being one of the major stakeholders on advanced breast cancer we are interested in providing our support on the Europe's Beating Cancer Plan. In this frame we ha a preliminary meeting with the Commissioner for Health and Food Safety on 5 February 2020 to offer our support. We are attending webinars and meeting on the Europe's Beating Cancer Plan and are are registered on the EU Health Policy Platform Agora Network (including the thematic group “Quality of Life” of the Stakeholder Contact Group on the Europe's Beating Cancer Plan).
    To reinforce the spirit of collaboration and support to the initiative the EU Commissioner for Health and Food Safety gave an opening lecture at our Advanced Breast Cancer Sixth International Consensus Conference last November addressing an inspiting lecture on "Europe’s Beating Cancer Plan and advanced cancer patients". She endorsed the fortcoming Advanced Breast Cancer Seventh International Consensus Conference that will take place in November as hybrid event (Lisbon and online) and she will be sending a video message that will be included in the opening ceremony. One of the Special Adviser to the European Commissioner for Health and Food Safety on cancer policy will be one of the Honorary Chaors at our conference.
    We are members of an initiative called Transforming Breast Cancer Together. launched in 2017, that brings together policymakers, patient organisations, professional organisations and companies committed to raising awareness of the daily realities of living with breast cancer. In the frame of this collaboration we recently had a meeting with the Cabinet of the Commissioner and DG Sante to evaluate how to support the implementation of the plan.

    Address

    Head Office
    c/o Fundação Champalimaud Avenida de Brasília s/n
    Lisbon 1400-038
    PORTUGAL
    EU Office
    c/o Fundação Champalimaud Avenida de Brasília s/n
    Lisbon 1400-038
    PORTUGAL

    Website

  • People

    Total lobbyists declared

    1

    Employment timeLobbyists
    25%1

    Lobbyists (Full time equivalent)

    0.25

    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    Union for International Cancer Control (UICC) https://www.uicc.org/
    Global Cancer Coalitions Network (GCCN) https://www.globalccn.org/
    African Organisation for Research and Training in Cancer (AORTIC) https://aortic-africa.org/
    ECO Community 365 https://www.europeancancer.org/community-365

    Member organisations

    None declared

  • Financial Data

    Interests represented

    Does not represent commercial interests

    Closed financial year

    Jan 2022 - Dec 2022

    Lobbying costs for closed financial year

    Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

    Total organisational budget in closed year

    1,450,000€

    Major funding types in closed year

    Grants, Other

    Funding types "other" information

    The Alliance is sustained by a pool of commercial partners by an yearly grant. All activities implemented are approved and supervised by the governing bodies of the association (Board of Directors and General Assembly) to guarantee the independence of objectives and outputs. The association is organizing a conference every other year and profits are reinvested in the activities of the association.

    Major contributions in closed year

    TypeNameAmount
    Contribution AstraZeneca 75,000€
    Contribution BMS 50,000€
    Contribution Daiichi Sankyo 75,000€
    Contribution Gilead 50,000€
    Contribution Lilly 75,000€
    Contribution Novartis 75,000€
    Contribution Pfizer 75,000€
    Contribution Roche 75,000€
    Contribution Sanofi 75,000€
    Contribution Seagen 75,000€
    Contribution Savings from previous operating years and income from ABC conference 750,000€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    Cancer

    Communication activities

    - I have Cancer but I want to work. Working rights for Cancer patients, event organized on 7 November 2018
    - Meeting with Commissioner Stella Kyriakides, 5 February 2020
    - Advanced Breast Cancer Sixth International Consensus Conference, 4-6 November 2021 (virtual)
    - Paper on "Gaps in Care and Support for Patients With Advanced Breast Cancer: A Report From the Advanced Breast Cancer Global Alliance" published on JCO on Sept 2021
    - Awareness campaign launched in November 2021 titled "The truth about working with advanced breast cancer" (https://www.workingwithabc.com/)
    - Paper on "Addressing disparities and challenges in underserved patient populations with metastatic breast cancer in Europe " published in The Breast in Dec 2020
    - Development of a QoL tool specific for ABC, in partnership with EORTC Quality of Life and Breast Cancer Groups (in progress)
    - Development of a Quality indicators for ABC/mBC, in partnership with ESO and EUSOMA (to be released soon)
    - Uncovering international disparities in metastatic breast cancer outcomes, in partnership with IARC (in progress)
    - Project to calculate the finantial impact of more flexible labour laws for cancer patients, in collaboration with Lisbon Medical University (report to be published soon). We are also considering to implement a similar initiative in Italy.
    - Contributors to The Lancet Commission on Breast Cancer that will be published in fall 2023
    - Contributors to the WHO Global Breast Cancer Initiative and as such contributors in the report that will be published in 2023 https://www.who.int/publications/i/item/9789240065987
    - An awareness campaign on access to care will be realeased in November 2023

    Other activities

    None declared

  • Meetings

    Meetings

    None declared

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