Overview
Lobbying Costs
500,000€ - 599,999€
Financial year: Jan 2023 - Dec 2023
Lobbyists (Full time equivalent)
8.5 Fte (10)
Lobbyists with EP accreditation
2
High-level Commission meetings
6
Lobbying Costs over the years
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Info
European Liver Patients' Association (ELPA)
EU Transparency Register
89292219623-93 First registered on 13 Sep 2012
Goals / Remit
ELPA’s aim is to promote the interests of people with liver disease and in particular: to highlight the size of the problem; to promote awareness and prevention; to address the low profile of liver disease as compared to other areas of medicine such as heart disease; to share experience of successful initiatives; to work with professional bodies such as EASL and with the EU to ensure that treatment and care are harmonised across Europe to the highest standards. Our Mandate:ELPA emerged from a desire amongst European liver patient groups to share their experiences of the often very different approaches adopted in different countries. In June 2004, 13 patient groups from 10 European and Mediterranean Basin countries met to create the association. ELPA was formally launched in Paris on April 14th 2005 during the annual conference of the European Association for the Study of the Liver (EASL) and now has 39 members from 29 countries. Our ultimate goal is a world without liver diseases.
Main EU files targeted
All aspects related to health, cancer, health statistics, research, development for health, cross-border healthcare, access to healthcare, new digital aspects of health, data privacy issues, clinical and pharmaceutical development.
Address
Head Office
Bastion Tower levels 11 & 12 Place du Champ de Mars, 1050 Brussels Begium
Brussels 1050
BELGIUMEU Office
Bastion Tower levels 11 & 12 Place du Champ de Mars, 1050 Brussels Begium
Brussels 1050
BELGIUMWebsite
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People
Total lobbyists declared
10
Employment time Lobbyists 100% 6 75% 2 50% 2 Lobbyists (Full time equivalent)
8.5
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
2 accreditations were / are live (in bold) for the selected state of 05 Nov 2024
Name Start date End Date Marko KORENJAK 23 Oct 2024 22 Oct 2025 Beatrice CREDI 22 Oct 2024 21 Oct 2025 Beatrice CREDI 20 Jan 2024 04 Oct 2024 Anastassiya SEMEISKAYA 15 Feb 2024 04 Oct 2024 Veronika VŠETI?KOVA 20 Jan 2024 04 Oct 2024 Milan MISHKOVIKJ 23 Jan 2024 04 Oct 2024 Marko KORENJAK 23 Jan 2024 04 Oct 2024 Ms Veronika VŠETIČKOVA 20 Jan 2024 26 Apr 2024 Beatrice CREDI 12 Jan 2023 12 Jan 2024 Milan MISHKOVIKJ 12 Jan 2023 12 Jan 2024 Marko KORENJAK 12 Jan 2023 12 Jan 2024 Ms Veronika VŠETIČKOVA 07 Oct 2022 07 Oct 2023 Milan MISHKOVIKJ 18 Jan 2022 12 Jan 2023 Marko KORENJAK 18 Jan 2022 12 Jan 2023 Beatrice CREDI 21 Dec 2021 21 Dec 2022 Milan MISHKOVIKJ 05 Jan 2021 05 Jan 2022 Ms Veronika VSETICKOVA 05 Jan 2021 05 Jan 2022 Marko KORENJAK 05 Jan 2021 05 Jan 2022 Milan MISHKOVIKJ 01 Nov 2019 31 Oct 2020 Marko KORENJAK 08 Oct 2019 08 Oct 2020 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
EMA PCWP
https://www.ema.europa.eu/en/partners-networks/patients-consumers/eligible-patients-consumers-organisations
EMA PRAC
https://www.ema.europa.eu/en/committees/pharmacovigilance-risk-assessment-committee-prac
ECDC Advisory Forum
https://www.ecdc.europa.eu/en/about-ecdc/who-we-are/governance/advisory-forum/observers
ECDC working group on monitoring hepatitis B and C in the EU
https://www.ecdc.europa.eu/sites/default/files/documents/hepatitis-B-C-monitoring-responses-hepatitis-B-C-epidemics-EU-EEA-Member-States-2019.pdf
WHO EURO Collaborating Committee on TB, HIV, and viral hepatitis
https://www.who.int/europe/groups/regional-collaborating-committee-on-accelerated-response-to-tuberculosis-hiv-and-viral-hepatitis-(rcc-thv)/about
HERA Civil Society Forum
https://health.ec.europa.eu/health-emergency-preparedness-and-response-hera/advisory-forum_en#civil-society-forumMember organisations
None declared
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Financial Data
Interests represented
Promotes their own interests or the collective interests of their members
Closed financial year
Jan 2023 - Dec 2023
Lobbying costs for closed financial year
500,000€ - 599,999€
Major contributions in closed year
Type Name Amount Grant Genial 29,000€ Grant A-tango 15,000€ Grant Liveration 44,000€ Grant FisPlat 33,000€ Grant IPCureB 50,000€ Grant Decision 14,000€ Grant Leopard 29,000€ Intermediaries for closed year
Name Amount moore stephens, belgium 10,000€ - 24,999€ Intermediaries for current year
Name moore stephens, belgium Closed year Costs
500,000€ - 599,999€
Other financial info
EU grants were received because we are Consortium Partners in 20 EU Projects.
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EU Structures
Groups (European Commission)
None declared
Groups (European Parliament)
Cancer
Communication activities
White paper on patient perspective, high-level events in EP and Commission, good practices, and conferences. Additionally, we are a part of 20 EU Medical research projects Horizon2020 and 1 project from the EITHealth platform and we are part of three additional projects which are now in the approval stage. We are constantly collaborating with the» Friends of Liver » MEP group and have just started collaborating with the European Kidney Patients' Federation which is collaborating with the MEP group »Kidney Health«. Elpa organized for the second time ELPA Screening week 2024 in front of EU Parliament, under the patronage of EU Parliament.
Other activities
None declared
Meetings
Meetings
6 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.
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Date 03 Apr 2023 Location Bruxelles Subject noncommunicable diseases Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
- Ralf Kuhne (Cabinet member)
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Date 03 Apr 2023 Location Bruxelles Subject VTC meeting on noncommunicable diseases Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Ralf Kuhne (Cabinet member)
- Stella Kyriakides (Commissioner)
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Date 03 Feb 2020 Location Brussels Subject presenting most important initiatives and discussing future collaboration DG Health and Food Safety Attending - Anne Bucher (Director-General)
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Date 02 Mar 2017 Location Brussels Subject Towards a renewed EU Alcohol and Health Forum Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Arunas Vinciunas (Cabinet member)
- Vytenis Andriukaitis (Commissioner)
- Paula Duarte Gaspar (Cabinet member)
Other Lobbyists -
Date 28 Nov 2016 Location Brussels Subject EU and NGOs action on HIV, TB and Hepatitis Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Paula Duarte Gaspar (Cabinet member)
- Vytenis Andriukaitis (Commissioner)
Other Lobbyists -
Date 11 Jan 2016 Location Brussels Subject Hepatitis: action to fight Hepatitis, access to Hepatitis treatment Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Paula Duarte Gaspar (Cabinet member)
- Vytenis Andriukaitis (Commissioner)