Association of European Cancer Leagues

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Registration as it was on 14 Oct 2024
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Overview

Lobbying Costs

300,000€ - 399,999€

Financial year: Jan 2023 - Dec 2023

Lobbyists (Full time equivalent)

10.25 Fte (13)

Lobbyists with EP accreditation

0

High-level Commission meetings

8

Lobbying Costs over the years

  • Info

    Association of European Cancer Leagues   (ECL)

    EU Transparency Register

    19265592757-25 First registered on 10 Dec 2009

    Goals / Remit

    The Association of European Cancer Leagues (ECL) is a non-profit, European umbrella organisation of national and regional cancer societies. ECL provides an exclusive platform for members to collaborate with their international peers, primarily in the areas of cancer prevention, tobacco control, cancer research, access to medicines and patient support, and creates opportunities to advocate for these issues at the EU and national level.

    ECL represents cancer leagues in the context of EU policy and advocates for members’ mutual priorities. ECL further provides administrative and technical support while offering a platform for an exchange of experiences and best practices between ECL member societies. ECL members work together primarily in the fields of cancer prevention (e.g., healthy lifestyles, skin protection and vaccinations HBV, HPV), tobacco control, access to medicines, quality of cancer care and support for cancer patients and survivors.

    Main EU files targeted

    Cancer prevention and control, tobacco control (including the Tobacco Products Directive and Tobacco Taxation Directive), sunbeds, access to treatment and care, patient support, non-communicable diseases (NCD), European Code Against Cancer (ECAC). All files and initiatives related to Europe's Beating Cancer Plan, Horizon Europe's Cancer Mission Board and the Pharmaceutical Strategy for Europe, Health Technology Assessments, clinical trials, EU Health Data Space, and the General Data Protection Regulation (GDPR).

    Address

    Head Office
    Chaussee de Louvain 479
    Brussels 1030
    BELGIUM
    EU Office
    Rue de l’Industrie 10Mundo-J
    Brussels 1000
    BELGIUM

    Website

  • People

    Total lobbyists declared

    13

    Employment timeLobbyists
    100%9
    50%1
    25%3

    Lobbyists (Full time equivalent)

    10.25

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    0 accreditations were / are live (in bold) for the selected state of 22 Nov 2024

    Name Start date End Date
    Roxana ALBU 03 Feb 2024 04 Oct 2024
    Anamarija TOMI?I? 13 Sep 2023 13 Sep 2024
    Arianna KHATCHADOURIAN 25 May 2023 25 May 2024
    Nicolas LATTEUR 16 May 2023 16 May 2024
    Wendy TSE-YARED 12 May 2023 11 May 2024
    Helena ROS COMESAÑA 13 Oct 2023 04 Oct 2024
    Toma MIKALAUSKAIT? 13 Oct 2023 04 Oct 2024
    Ms Toma MIKALAUSKAITĖ 13 Oct 2023 26 Apr 2024
    Ms Anamarija TOMIČIĆ 13 Sep 2023 26 Apr 2024
    Sara BERTUCCI 13 Sep 2023 26 Apr 2024
    Ms Toma MIKALAUSKAITĖ 13 Oct 2022 13 Oct 2023
    Helena ROS COMESAÑA 09 Sep 2022 09 Sep 2023
    Sara BERTUCCI 09 Sep 2022 09 Sep 2023
    Mr David Ritchie 04 Mar 2022 30 Nov 2022
    Wendy TSE-YARED 27 Jan 2022 27 Jan 2023
    Ms Linda Abdelall 08 Jan 2022 09 Sep 2022
    Ms Flore Rennesson 08 Jan 2022 09 Sep 2022
    Ms Ginevra Papi 07 Jan 2022 30 Nov 2022
    Wendy TSE-YARED 06 Aug 2020 28 Aug 2021
    Ms Anna Prokupkova 06 Aug 2020 09 Dec 2020
    Ms Adele Barlassina 25 Jan 2020 01 Dec 2020
    Mr Luc Joossens 29 Oct 2019 29 Apr 2020
    Ms Ginevra Papi 29 Oct 2019 29 Oct 2020
    Wendy TSE-YARED 04 Sep 2019 06 Aug 2020
    Elisabeth DUPONT 04 Sep 2019 26 Oct 2019
    Ms Ginevra Papi 09 May 2019 29 Oct 2019
    Mr David Ritchie 08 May 2019 08 May 2020
    Ms Anna Prokupkova 08 May 2019 08 May 2020
    Mr Luc Joossens 01 Dec 2018 29 Oct 2019
    Ms Meritxell Mallafré Larrosa 03 Oct 2018 01 May 2019
    Wendy TSE-YARED 27 Sep 2018 04 Sep 2019
    Elisabeth DUPONT 27 Jun 2018 01 Jul 2019
    Ms Anna Prokupkova 19 May 2018 08 May 2019
    Mr David Ritchie 18 May 2018 08 May 2019
    Ms Asnate Kaupe 24 Feb 2018 01 Aug 2018
    Mr Luc Joossens 10 Nov 2017 10 Nov 2018
    Wendy TSE-YARED 02 Sep 2017 01 Sep 2018
    Ghislaine GERBIER 02 Sep 2017 01 Sep 2018
    Mr David Ritchie 09 Jun 2017 18 May 2018
    Ms Anna Prokupkova 09 Jun 2017 19 May 2018
    Maximillian KEMP 25 Apr 2017 14 Jun 2017
    Mr Luc Joossens 10 Oct 2016 04 Oct 2017
    Wendy TSE-YARED 06 Sep 2016 02 Sep 2017
    Ghislaine GERBIER 06 Sep 2016 02 Sep 2017
    Mr David Ritchie 15 Jun 2016 10 Jun 2017
    Ms Kate O'REGAN 03 Jun 2016 26 Apr 2017
    Ms Martina Chen 04 May 2016 26 Apr 2017
    Mr Luc Joossens 06 Oct 2015 02 Oct 2016
    Wendy TSE-YARED 17 Sep 2015 07 Sep 2016
    Ghislaine GERBIER 17 Sep 2015 07 Sep 2016
    Mr David Ritchie 24 Jun 2015 16 Jun 2016
    Ms Kate O'REGAN 11 Jun 2015 04 Jun 2016
    Wendy TSE-YARED 17 Sep 2014 15 Sep 2015
    Ghislaine GERBIER 17 Sep 2014 15 Sep 2015
    Mr Luc Joossens 23 Oct 2014 06 Oct 2015
    Wendy TSE-YARED 17 Sep 2014 27 Jan 2015
    Ghislaine GERBIER 17 Sep 2014 27 Jan 2015
    Ms Kate O'REGAN 24 Jul 2014 22 Jul 2015
    Mrs Emma WOODFORD 09 Nov 2013 15 May 2014
    Ghislaine GERBIER 26 Oct 2013 17 Sep 2014
    Mr Luc Joossens 26 Oct 2013 23 Oct 2014
    Wendy TSE-YARED 22 Oct 2013 17 Sep 2014
    Ms Winne KO 08 Oct 2013 05 Oct 2014
    Ghislaine GERBIER 21 Nov 2012 22 Oct 2013
    Mr Luk Joossens 21 Nov 2012 22 Oct 2013
    Wendy TSE-YARED 20 Nov 2012 22 Oct 2013
    Mrs Emma WOODFORD 14 Nov 2012 26 Oct 2013
    Mrs Emma WOODFORD 08 Dec 2011 01 Nov 2012
    Wendy TSE-YARED 08 Dec 2011 01 Nov 2012
    Ghislaine GERBIER 08 Dec 2011 01 Nov 2012

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    European Public Health Alliance (EPHA)
    Health and Environment Alliance (HEAL)
    Cancer Prevention Europe (CPE)
    European Cancer Organisation (ECO)
    Smoke Free Partnership (SFP) Coalition Member
    Union for International Cancer Control (UICC) on ad-hoc basis (all our members are also members of UICC)
    Global Alliance for Tobacco Control (GATC)
    European Society for Medical Oncology (ESMO) Patient membership

    Member organisations

    https://www.cancer.eu/members/

  • Financial Data

    Interests represented

    Promotes their own interests or the collective interests of their members

    Closed financial year

    Jan 2023 - Dec 2023

    Lobbying costs for closed financial year

    300,000€ - 399,999€

    Major contributions in closed year

    TypeNameAmount
    Grant EU4Health Operating Grant 2023 423,526€

    Major contributions in current year

    TypeNameAmount
    Grant Various EU4Health Projects, approx 40,000€

    Intermediaries for closed year

    None declared

    Intermediaries for current year

    None declared

    Closed year Costs

    300,000€ - 399,999€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    eHealth Stakeholder Group#E02769#https://ec.europa.eu/transparency/expert-groups-register/screen/expert-groups/consult?lang=en&groupID=2769 #MEMBER #C#Civil societyLow Voltage Directive Working Party#E01342#https://ec.europa.eu/transparency/expert-groups-register/screen/expert-groups/consult?lang=en&groupID=1342 #OBSERVER #C#Employees/workers

    Groups (European Parliament)

    Unofficial groupings,Artificial intelligence and digital,Cancer,Green new deal

    Communication activities

    We coordinate the flagship campaign European Week Against Cancer (EWAC) every year from 25-31 May. We are responsible for the organisation of the triennial tobacco control policy conference European Conference on Tobacco or Health (ECToH). We participate in key EU Joint Actions and EU-funded projects in work packages related to communication and dissemination, such as the recent European Joint Action on Vaccination (EU-JAV), the Innovative Partnership Action Against Cancer (iPAAC), the My Personal Breast Screening (MyPeBS ) and CBIG-SCREEN. We work with our 31 member societies to provide position statements and respond to health and cancer-related public consultations. As the official Secretariat for the MEPs Against Cancer (MAC) Interest Group at the European Parliament, we are responsible for organising all MAC events upon the request of MEPs.

    Other activities

    None declared

  • Meetings

    Meetings

    8 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

    1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.

    • Date 09 Apr 2024 Location Videoconference
      Subject Europe’s Beating Cancer Plan; quality of life
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Attending
      • Stella Kyriakides (Commissioner)
      • Tove Ernst (Cabinet member)
      Other Lobbyists
    • Date 27 May 2022 Location Cyprus
      Subject Visit to the Arodapnhousa Palliative Care Centre
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Attending
      • Stella Kyriakides (Commissioner)
    • Date 15 Jan 2021 Location Brussels, virtual meeting
      Subject Exchange of views on the EU Pharmaceutical Strategy
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Attending
      • Stella Kyriakides (Commissioner)
    • Date 25 May 2020 Location Brussels
      Subject VC meeting with discussion on access to care for cancer patients, clinical trials and research, healthcare systems in Member States during COVID-19, data collection and future funding.
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Attending
      • Stella Kyriakides (Commissioner)
    • Date 20 Jan 2020 Location Brussels
      Subject Discussion on cancer
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Attending
      • Tove Ernst (Cabinet member)
      • Stella Kyriakides (Commissioner)
      Other Lobbyists
    • Date 05 Jun 2018 Location Brussels
      Subject HTA
      Cabinet Cabinet of Commissioner Vytenis Andriukaitis
      Portfolio Health &amp; Food Safety
      Attending
      • Annika Nowak (Cabinet member)
      • Vytenis Andriukaitis (Commissioner)
      Other Lobbyists
    • Date 02 Mar 2017 Location Brussels
      Subject Towards a renewed EU Alcohol and Health Forum
      Cabinet Cabinet of Commissioner Vytenis Andriukaitis
      Portfolio Health &amp; Food Safety
      Attending
      • Vytenis Andriukaitis (Commissioner)
      • Arunas Vinciunas (Cabinet member)
      • Paula Duarte Gaspar (Cabinet member)
      Other Lobbyists
    • Date 06 Mar 2015 Location Brussels
      Subject EU ACTION ON CANCER INCLUDING INO ON ON-GOING JOINNT ACTIONS AND THE CANCER CODE, Possibilites of further co-operation & Tobacco
      Cabinet Cabinet of Commissioner Vytenis Andriukaitis
      Portfolio Health &amp; Food Safety
      Attending
      • Paula Duarte Gaspar (Cabinet member)
      • Vytenis Andriukaitis (Commissioner)
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