Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2020 - Dec 2020
Lobbyists (Full time equivalent)
3 Fte (7)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
National Patients' Organisation - Bulgaria (NPO)
EU Transparency Register
499828110213-28 First registered on 29 Nov 2012
Goals / Remit
Our vision for the future is a patient-centered healthcare system where patients’ rights are developed and affirmed. We also envision equal access to high quality healthcare for all citizens.
We aim at affirmation of strong united patients’ movement on regional and national level with a visible participation on every level of the healthcare system. We nurture empowered patient community that is seen as key factor by all stakeholders in public systems at the development of health policies. We strive for patient and stakeholder awareness about the rights and the obligations of the patients.
NPO has a strong profile in advocacy and institutional collaboration as it leads the Secretariat of the permanent consultative body to the Council of Ministers in Bulgaria.
The main objectives set out in the statutes of the National Patients’ Organization are meant to carry out activities in interest of the society.Main EU files targeted
- European Semester
- Horizon 2020
- EU health policies
- Access to healthcareAddress
Head Office
Chataldzha Str. 76 floor 5
Sofia 1527
BULGARIAEU Office
Chataldzha Str. 76 floor 5
Sofia 1527
BULGARIAWebsite
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People
Total lobbyists declared
7
Employment time Lobbyists 100% 1 75% 1 25% 5 Lobbyists (Full time equivalent)
3
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 28 Apr 2024
Name Start date End Date Mr Stanimir Hasardzhiev 26 Jan 2017 25 Jan 2018 Mr Stanimir Hasardzhiev 11 Jul 2015 09 Jul 2016 Mr Stanimir Hasardzhiev 20 May 2014 05 Jun 2015 Mr Stanimir Hasardzhiev 06 Dec 2012 30 Nov 2013 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
-
Categories
Category
Non-governmental organisations, platforms and networks and similar
-
Networking
Affiliation
- As from March 2012 National Patients’ Organization is member of the European Patients' Forum.
The European Patients’ Forum (EPF) was founded in 2003 to become the collective patients’ voice at EU level, manifesting the solidarity, power and unity of the EU patients’ movement. EPF currently represents 55 member organisations - which are chronic disease specific patient organisations working at European level, and national coalitions of patients organisations. EPF reflects the voice of an estimated 150 million patients affected by various diseases throughout Europe.EPF’s vision for the future is high quality, patient-centred, equitable healthcare throughout the European Union.
Official webpage of EPF: https://www.eu-patient.eu/
- National Patients' Organisation is co-founder, together with European Patients' Forum, of PACT - Patiients' Access Partnership: The Patient Access Partnership is a patient-led multi-stakeholder network bringing together patients, the medical and public health community, industry and the European and member states policy makers and institutions, in order to develop and move forward on innovative solutions to reduce inequities in access to quality healthcare in the European Union.
The Partnership emerged from the political momentum after the adoption of the Vilnius Declaration Call for Action - "Sustainable Healthcare System for Inclusive Growth in Europe", affirming:
"To ensure universal access to high quality people-centered health services" and for "a partnership approach between all stakeholders in the health sector at national and European levels... to improve equity of access to healthcare".
Official web page of PACT: http://www.eupatientaccess.eu/page.php?i_id=21
- Since March 2012 National Patients’ Organization is member of the International Alliance of Patients’ Organizations.
IAPO is a unique global alliance representing patients of all nations across all disease areas and promoting patient-centred healthcare across the world. IAPO has 276 member organizations from 71 countries representing 50 disease areas. Our vision is to see patients placed at the centre of healthcare. Our mission is to help build patient-centred healthcare worldwide.
Official webpage of IAPO:
https://www.iapo.org.uk/Member organisations
The National Patients' Organization (NPO) is the largest union of patient organizations in Bulgaria comprising more than 80 disease-specific member organizations, including healthy ageing management chronic conditions such as cardio-vascular diseases, diabetes, cancer etc. NPO is represented through its legally endorsed membership in all 28 regions in Bulgaria. The ideology and high ethical standards, ingrained in the values of the organization, triggered a rippling effect in the patients’ community. Since its inception in 2010, NPO has been annually granted the status of a nationally representative patients’ organization by the Ministry of Healthcare.
List of members:
Foundation “Movement of the Bulgarian mothers”
Field: child protection
“Multiple Sclerosis Society – Bulgaria” Foundation
Field: multiple sclerosis
Foundation of Patients with Chronic Kidney Disease and Haemodialysis in Bulgaria
Field: chronic kidney disease
Foundation “I”
Field: HIV/AIDS
Association of Patients with Cancer and Friends
Field: cancer
Bulgarian Association of Victims of Car Accidents
Field: injuries during car accidents
Association of People with Bladder-related Problems
Field: bladder infections
Association of the Patients with Facial Anomalies and Their Parents (ALA)
Field: facial anomalies
Bulgarian Transplant Union
Field: transplant patients
Bulgarian Association Lymphoma
Field: lymphoma
National Association for Fighting Hepatitis
Field: hepatitis
HepActive
Field: hepatitis
National Association for Prevention of Cervical Cancer
Field: cervical cancer
Bulgarian Haemophilia Association
Field: haemophilia
“Open Interaction” Association
Field: hearing impairment
National Association of Patients with Chronic Myeloid Leukemia
Field: chronic myeloid leukemia
Association “Life in Dignity for Patients with Parkinson’s Disease in Bulgaria”
Field: Parkinson’s disease
Association “Children with oncohematologic diseases”
Field: oncohematologic diseases
Association of Patients with Rheumatoid Arthritis
Field: rheumatoid Arthritis
Patient Association “Glaucoma”
Field: glaucoma
Hope-Sofia
Field: addiction
Association of Parents of Children with Kidney Diseases
Field: kidney diseases
“Hearth” Association
Field: cardiovascular diseases
Bulgarian Society of Patients with Pulmonary Hypertension
Field: pulmonary hypertension
Association “VIOM”
Field: thyroid diseases
Association of Parents with Children with Down Syndrome
Field: Down syndrome
National Association “Diabetes, Prediabetes and Metabolic Syndrome”
Field: diabetes
“Association Genome”
Field: patients with genetic and inborne conditions
Association of Patients with Gastrointestinal Stromal Tumour in Bulgaria
Field: Gastrointestinal Stromal Tumour
Foundation “Compassion Alzheimer Bulgaria”
Field: Alzheimer
NGO “ARTRA”
Field: patients’ rights
Association of Women with Cancer and Their Supporters “I Have Strength to Fight”
Field: cancer
NGO “Integration”
Field: sensors, motor and mental disorders
“2002 Hopes” Association
Field: patients’ rights
“Thirst for Life” Association
Field: HIV/AIDS prevention; risk groups
NGO “Health and Morals”
Field: patient empowerment
Association of Women with Cancer and Their Supporters – Burgas
Field: cancer
Association “Child’s Heart – Dobritch”
Field: cardiovascular diseases
Foundation “Tromboflebitis Patients in Action”
Field: tromboflebitis
Association “Cancer Patients and Friends” – Burgas
Field: cancer
NGO “Smile”
Field: development opportunities, education and social integration
National Association of Children and Youths with Diabetes”
Field: diabetes
Association “Patient Network”
Field: patients’ rights and education
Association “Tacitus”
Field: autism and mental disorders
Association “Autism Today”
Field: autism
Foundation “Step for the Invisible Children of Bulgaria”
Field: autism
Association “ARZ Solidarity”
Field: Addiction (substances and hazard)
Patients with Cancer and Friends – Gabrovo
Field: cancer
Link to the full list of members: http://npo.bg/members/ -
Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2020 - Dec 2020
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
312,002€
Major funding types in closed year
Donations, Grants
Major contributions in closed year
None declared
Other financial info
None declared
-
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
Social economy#Children's rights#Anti-corruption#Cancer#Demographic challenges, family-work balance and youth transition#Anti-racism and diversity#Green new deal#Rural, mountainous and remote areas (RUMRA) and smart villages#Disability
Communication activities
• EC representatives, Patients, MPs and ministers agree on the need to make healthcare a priority for the whole society
More info at:
https://npo.bg/%d0%bf%d0%b0%d1%86%d0%b8%d0%b5%d0%bd%d1%82%d0%b8-%d0%b4%d0%b5%d0%bf%d1%83%d1%82%d0%b0%d1%82%d0%b8-%d0%b8-%d0%bc%d0%b8%d0%bd%d0%b8%d1%81%d1%82%d1%80%d0%b8-%d1%81%d0%b5-%d0%be%d0%b1%d0%b5%d0%b4%d0%b8/
• Free consultations for "pediatric" vaccines and for patients with COVID-19 on tel. 0800 14 515 until the end of March 2022.
More info at:
https://npo.bg/consultations/
•Health experts and patients commented on the priorities in health prevention and disease prevention
More info at:
https://npo.bg/mladeji_v_deistvie/
• Експерти: Пациентските организации да са конструктивни в диалога за качествено здраве
More info at:
https://npo.bg/%d0%b5%d0%ba%d1%81%d0%bf%d0%b5%d1%80%d1%82%d0%b8-%d0%bf%d0%b0%d1%86%d0%b8%d0%b5%d0%bd%d1%82%d1%81%d0%ba%d0%b8%d1%82%d0%b5-%d0%be%d1%80%d0%b3%d0%b0%d0%bd%d0%b8%d0%b7%d0%b0%d1%86%d0%b8%d0%b8-%d0%b4/
• Dr. Stanimir Hasardjiev: "For God's sake, brothers, get vaccinated!"
https://npo.bg/%d0%b4-%d1%80-%d1%81%d1%82%d0%b0%d0%bd%d0%b8%d0%bc%d0%b8%d1%80-%d1%85%d0%b0%d1%81%d1%8a%d1%80%d0%b4%d0%b6%d0%b8%d0%b5%d0%b2-%d0%b7%d0%b0-%d0%b1%d0%be%d0%b3%d0%b0-%d0%b1%d1%80%d0%b0%d1%82%d1%8f/
• 10,000 Bulgarians consulted on the hot COVID phone of the National Patient Organization in the last 14 months
More info at:
https://npo.bg/10-000-%d0%b1%d1%8a%d0%bb%d0%b3%d0%b0%d1%80%d0%b8-%d1%81%d0%b5-%d0%ba%d0%be%d0%bd%d1%81%d1%83%d0%bb%d1%82%d0%b8%d1%80%d0%b0%d1%85%d0%b0-%d0%bd%d0%b0-%d0%b3%d0%be%d1%80%d0%b5%d1%89%d0%b8%d1%8f-cov/
• A civic debate discussed the state of the health system between the pandemic and reforms
More info at:
https://npo.bg/%d0%bf%d1%80%d0%be%d0%b2%d0%b5%d0%b4%d0%b5-%d1%81%d0%b5-%d0%be%d0%b1%d1%89%d0%b5%d1%81%d1%82%d0%b2%d0%b5%d0%bd-%d0%b4%d0%b5%d0%b1%d0%b0%d1%82-%d0%be%d1%87%d0%b0%d0%ba%d0%b2%d0%b0%d0%bd%d0%b8/
•Regional study on access to health care in the context of COVID-19
More info at:
https://npo.bg/%d0%bd%d0%bf%d0%be-%d0%b8%d0%bd%d0%b8%d1%86%d0%b8%d0%b8%d1%80%d0%b0-%d0%bf%d1%80%d0%be%d1%83%d1%87%d0%b2%d0%b0%d0%bd%d0%b5-%d0%b4%d0%be%d1%81%d1%82%d1%8a%d0%bf-%d0%b4%d0%be-%d0%b7%d0%b4%d1%80%d0%b0/
•Free research on socially significant diseases during the exhibition & Bulmedica / Buldental / Derma Aesthetics 2021
More info at:
https://npo.bg/%d0%b1%d0%b5%d0%b7%d0%bf%d0%bb%d0%b0%d1%82%d0%bd%d0%b8-%d0%b8%d0%b7%d1%81%d0%bb%d0%b5%d0%b4%d0%b2%d0%b0%d0%bd%d0%b8%d1%8f-%d0%b7%d0%b0-%d1%81%d0%be%d1%86%d0%b8%d0%b0%d0%bb%d0%bd%d0%be%d0%b7%d0%bd/
Reports and news about the activities of National Patients' Organisation through the years could be found on our official webpage:
https://npo.bg/about-us/annual-reports/
https://npo.bg/category/topical/Other activities
- Charperson of NPO - Dr. Stanimir Hasardzhiev, participated as speaker at: Third forum of the Scientific Panel for Health1 'Enabling health equality in Europe – the role of health research’ . Charlemagne building, rue de la Loi, 170 1040 Brussels, Belgium Monday 6 May 2019.
- Charperson of NPO - Dr. Stanimir Hasardzhiev, participated at: Workshop on Health Data to Empower Patients in the European Union, organised by the European Commission and hosted by the Dutch Ministry of Health, Welfare and Sports, and the Dutch Patient Federation. The Workshop will take place on Wednesday, 27 November 2019 at the following venue: 7AM, Buitenhof 47, 2513 AH, The Hague.- Meetings
Meetings
None declared
- Meetings