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Overview
Lobbying Costs
200,000€ - 299,999€
Financial year: Jan 2023 - Dec 2023
Lobbyists (Full time equivalent)
8.7 Fte (14)
Lobbyists with EP accreditation
0
High-level Commission meetings
1
Lobbying Costs over the years
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Info
The European Institute for Innovation through Health Data (i~HD)
EU Transparency Register
676053343264-27 First registered on 22 Jun 2021
Goals / Remit
The European Institute for Innovation through Health Data (i~HD) is a not for profit institute registered in Belgium. It is a membership-based organisation with members from pharma, healthcare providers, academic organisations, and works closely with patient organisations, healthcare payers, the health ICT sector and standards development organisations. i~HD develops methods, solutions and services that can maximise the value obtained from health data, to support innovations in health, health care and knowledge discovery, while ensuring compliance with legal prerequisites, especially regarding patient’s privacy protection. It tackles areas of challenge in the successful scaling up of innovations that rely on high quality and interoperable health data. It collates, develops and supports adoption of best practices in information governance and data protection, with special focus on the reuse of health data for learning health systems.
Main EU files targeted
Opportunities, stakeholder value and acceptance factors in support of the European Health Data Space
The adoption of the EU GDPR relating to the use of health data for research
The health sector implications of the Data Governance Act
Promotion of the Digital Health and Care Innovation initiative of the Digital Single Market Strategy
The health sector implications of the forthcoming AI RegulationAddress
Head Office
Merebaaistraat 10
Oosterzele 9860
BELGIUMEU Office
Merebaaistraat 10
Oosterzele 9860
BELGIUMWebsite
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People
Total lobbyists declared
14
Employment time Lobbyists 100% 5 75% 2 50% 3 25% 2 10% 2 Lobbyists (Full time equivalent)
8.7
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
i~HD is a member of the EU Health Coalition
Member organisations
None declared
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Financial Data
Interests represented
Promotes their own interests or the collective interests of their members
Closed financial year
Jan 2023 - Dec 2023
Lobbying costs for closed financial year
200,000€ - 299,999€
Major contributions in closed year
Type Name Amount Grant Horizon 2020 and IMI 100,000€ Grant IHI 500,000€ Major contributions in current year
Type Name Amount Grant Horizon 2020 and IMI 772,000€ Intermediaries for closed year
None declaredIntermediaries for current year
None declaredClosed year Costs
200,000€ - 299,999€
Other financial info
None declared
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EU Structures
Groups (European Commission)
eHealth Stakeholder Group#E02769#https://ec.europa.eu/transparency/expert-groups-register/screen/expert-groups/consult?lang=en&groupID=2769 #MEMBER #C#Academia/Research
Groups (European Parliament)
N/A
Communication activities
The organisation and reporting of multi-stakeholder roundtables, focus groups and workshops discussing topics relating to the governance, protection, interoperability, sharing and quality of health data, for public health and research purposes. From these we collect requirements, use cases, success factors and barriers, approaches that could be adopted and stakeholder concerns, which we collate into policy-influencing reports and presentation materials. These have contributed directly into EC intelligence gathering as it develops the concept, governance models, operational models and later the implementation of the EHDS.
Promoting the importance of interoperability standards to different stakeholder groups, and promoting the importance of good data quality, so that health data is usable and useful for the big data opportunities that will be enabled by the EHDS. From these activities we understand the present barriers to standards adoption and data quality, the incentives that need to be triggered through future policy instruments, and we contribute this back into the European Commission for consideration, especially now in relation to the EHDS.
Working with multiple European projects and with multi stakeholder communities on the challenges and emergent good practices in complying with the GDPR when it comes to reusing health data for research, especially for big data networks. We are collating these adoption and compliance challenges, as areas for potential recommended improvement to a future revision of the GDPR. Many of these areas are also potential areas that the Data Governance Act might fill, so we additionally contribute input to the Commission on the implementation of this Act.
Contributing to webinars and online conferences, in person conferences, about topics that contribute to the European momentum and capacity for cross-border data sharing and analysis including trustworthy AIas input to support the adoption and compliance with the AI Act.Other activities
None declared
Meetings
Meetings
1 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.
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Date 10 Oct 2022 Location Bruxelles Subject Working group on European Health Data Space Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Ralf Kuhne (Cabinet member)
Other Lobbyists