Overview
Lobbying Costs
1,000,000€ - 1,249,999€
Financial year: Jan 2022 - Dec 2022
Lobbyists (Full time equivalent)
11.25 Fte (17)
Lobbyists with EP accreditation
9
High-level Commission meetings
12
Lobbying Costs over the years
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Info
European Cancer Organisation (E.C.O.)
EU Transparency Register
51022176260-12 First registered on 20 Jul 2011
Goals / Remit
Our Mission: To reduce the burden of cancer, improve outcomes and the quality of care for cancer patients, through multidisciplinarity and multiprofessionalism. As the not-for-profit federation of member organisations working in cancer at a European level, we convene oncology professionals and patients to agree policy, advocate for positive change and be the united voice of the European cancer community.
Main EU files targeted
The European Cancer Organisation’s activities on cancer policy cause it to take interest in a wide range of EU initiatives, policies and legislative files relevant to cancer including:
- Europe’s Beating Cancer Plan and all connected initiative
- The EU Cancer Mission
- European Health Data Space
- The EU Pharmaceutical Strategy
- The EU4Health Programme
- EU policy on health and safety at work
- The Horizon Europe research programme
- Professional Qualification Recognition legislation
- Digital health, including artificial intelligence
- Social rights, including tackling discrimination against cancer patients and survivors within and outside the workplace
- Personalised medicine and precision oncology
- Real world data use and outcome measurement
- The European Commission Initiative on Breast Cancer and other Joint Research Centre led activities relevant to cancer
- Achieving earlier cancer diagnosis, including EU Cancer Screening policy
- Quality Assurance in Cancer care
- Cancer Prevention and the European Code Against Cancer
- Legislation, regulation and other actions related to prevention of cancer including modifiable risk factors such as tobacco, alcohol, diet, exercise, sunbed use, workplace carcinogens
- Clinical trial regulation
- Workforce planning, education, mobility and safety
- Addressing healthcare inequalities
- Air pollution
- EU-WHO interactions
- EU initiatives to support vaccination
- Healthcare determinants and health literacy
- Use of EU structural funds to improve infrastructures for cancer care and treatment
- EU funding mechanisms such as HaDEA, Horizon, COST, Erasmus, Social Fund
- Healthcare across borders, including the role of the European Reference Networks (ERNs) and improving access to clinical trials across borders
- Patient Safety
- Antimicrobial resistance
- State of Health in the EU
- Data Protection
- Multiannual Funding Framework
- Court of Justice decisions relevant to healthcare delivery
- Health Workforce Planning
- Joint Actions such as JANE, CRANE and PERCH
- Better integration of primary care into cancer care
- Survivorship
- Quality of Life and Wellbeing
- Disease control and prevention including the activities of the ECDCAddress
Head Office
Rue de la Science 41
Brussels 1040
BELGIUMEU Office
Rue de la Science 41
Brussels 1040
BELGIUMWebsite
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People
Total lobbyists declared
17
Employment time Lobbyists 100% 5 75% 3 50% 7 25% 2 Lobbyists (Full time equivalent)
11.25
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
9 accreditations were / are live (in bold) for the selected state of 25 Nov 2024
Name Start date End Date Natalia Richardson 10 Oct 2024 10 Oct 2025 László Csaba Dégi 03 Oct 2024 03 Oct 2025 ALVARO JIMBER HABA 10 Oct 2024 10 Oct 2025 Giuseppe FILITI 15 Jul 2024 15 Jul 2025 Marion L'HOTE 28 Aug 2024 28 Aug 2025 Otilia Colceriu 11 Jul 2024 11 Jul 2025 Richard Delahay 18 Jun 2024 30 Oct 2024 Michael Morrissey 20 Jun 2024 20 Jun 2025 Richard Perceval-Price 18 Jun 2024 18 Jun 2025 Gloria VENEGONI 29 Apr 2023 27 Apr 2024 Nela Osmanovic 16 Feb 2024 04 Oct 2024 Giuseppe FILITI 27 May 2023 25 May 2024 Yasen NAYDENOV 27 May 2023 25 May 2024 Jack LATTEUR 27 May 2023 25 May 2024 Csaba László Degi 20 Mar 2024 04 Oct 2024 Marion L'HOTE 31 Aug 2023 01 Sep 2024 Marina Ximeri 16 Feb 2024 04 Oct 2024 Silvia ROMEO 19 Jan 2024 04 Oct 2024 Giacomo LAZZARO 29 Apr 2023 27 Apr 2024 Norbert COUESPEL 03 May 2023 04 May 2024 Eric BIENEFELD 02 Jun 2023 02 Jun 2024 Mike MORRISSEY 29 Apr 2023 27 Apr 2024 Richard Price 29 Apr 2023 27 Apr 2024 riccardo moschetti 26 Apr 2024 26 Apr 2026 Mr Kristiyan Dimitrov 22 Sep 2023 19 Dec 2023 Ms Marjola MEMAJ 31 May 2023 24 Oct 2023 Ms Miriam ROMERO PICÓ 31 May 2023 24 Oct 2023 Ana MULA APARICIO 27 May 2023 25 Oct 2023 Mr Enea VENEGONI 29 Apr 2023 04 May 2023 riccardo moschetti 29 Apr 2023 26 Apr 2024 Ms Judith KINZEL 18 Mar 2023 31 Aug 2023 Silvia ROMEO 28 Oct 2022 28 Oct 2023 Ms Ivana LORENZATTI 27 Oct 2022 13 Mar 2023 Norbert COUESPEL 04 May 2022 03 May 2023 Mike MORRISSEY 04 May 2022 29 Apr 2023 Richard Price 04 May 2022 29 Apr 2023 Giacomo LAZZARO 29 Apr 2022 29 Apr 2023 riccardo moschetti 29 Apr 2022 29 Apr 2023 Norbert COUESPEL 08 Feb 2020 01 Aug 2020 Mr Matti AAPRO 28 Nov 2019 28 Nov 2020 Eric BIENEFELD 15 Nov 2019 01 Dec 2020 Mike MORRISSEY 10 Oct 2019 01 Nov 2020 Richard Price 04 Oct 2019 03 Oct 2020 Ms Agnese KONUSEVSKA 03 Oct 2019 03 Oct 2020 Nela Osmanovic 03 Oct 2019 03 Oct 2020 Ms Pascale Blaes 19 Jun 2019 02 Oct 2019 Birgit BEGER 12 Jul 2018 30 Jan 2019 Ms Pascale Blaes 19 Jun 2018 19 Jun 2019 Richard Price 08 Jun 2018 01 Jun 2019 Ms Sapna SHETH 15 Feb 2018 30 Jan 2019 Birgit BEGER 27 Jun 2017 23 Jun 2018 Ms Françoise Van Hemelryck 25 Apr 2017 14 Feb 2018 Richard Price 25 Apr 2017 25 Apr 2018 Birgit BEGER 20 Jun 2016 17 Jun 2017 Mr Pierre Roca 31 May 2016 26 Apr 2017 Complementary Information
Apart from staff, our volunteers of medical professionals regularly advise and engage with us on EU-related matters.
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
• All.Can
• Biomedical Alliance in Europe
• European Chronic Disease Alliance
• EPHA – European Public Health Alliance
• FAIB - Federation of European and International Associations Established in Belgium
• UICC - Union for International Cancer Control
• FEAM - Federation of European Academies of MedicineMember organisations
Each of our 42 Member Societies provide specific expertise in their discipline or profession in cancer.
The full list of members is available here: https://www.europeancancer.org/members. -
Financial Data
Interests represented
Promotes their own interests or the collective interests of their members
Closed financial year
Jan 2022 - Dec 2022
Lobbying costs for closed financial year
1,000,000€ - 1,249,999€
Major contributions in closed year
Type Name Amount Grant INTERACT-EUROPE 358,876€ Grant EU-NAVIGATE 40,359€ Grant 4D PICTURE 20,377€ Grant STRONG-AYA 60,778€ Grant EURAMED rocc-n-roll 8,552€ Grant smartCARE 209,525€ Grant PROTECT-EUROPE 127,895€ Grant EUonQoL 77,468€ Grant SANGUINE 50,836€ Grant TOGAS 15,913€ Grant DigiCanTrain 20,358€ Grant TRANSiTION 50,270€ Grant PRAISE-U 14,841€ Grant SOLACE 14,774€ Grant CCI4EU 19,079€ Grant INTERACT100 3,475€ Major contributions in current year
Type Name Amount Grant INTERACT-EUROPE 26,421€ Grant EU NAVIGATE 43,268€ Grant STRONG-AYA 60,375€ Grant 4D PICTURE 18,116€ Grant PROTECT-EUROPE 87,480€ Grant smartCARE 177,567€ Grant EUonQOL 86,420€ Grant SANGUINE 128,647€ Grant PRAISE-U 17,325€ Grant SOLACE 15,766€ Grant TOGAS 17,645€ Grant DigiCanTrain 14,892€ Grant TRANSITION 71,139€ Grant CCI4EU 16,883€ Grant INTERACT100 485,371€ Grant ECHoS 8,167€ Grant ALTHEA 36,386€ Grant DESIPOC 21,048€ Grant MELODIC 13,313€ Intermediaries for closed year
None declaredIntermediaries for current year
None declaredClosed year Costs
1,000,000€ - 1,249,999€
Other financial info
The data on the financial year 2023 is included above in the section ("In the most recent closed financial year"), but is actually not yet closed. It will be officially closed following the Board approval of our audited accounts in June 2024.
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EU Structures
Groups (European Commission)
none
Groups (European Parliament)
European Cancer Organisation has been pleased to establish in 2022 a new grouping, National and European Parliamentarian for Cancer Action.
Bringing together National and European parliamentarians who are committed to beating cancer and tackling inequalities in cancer on a national and European basis, this new Network for political action will:
- Heighten political understanding of the inequalities in cancer care requiring priority attention across Europe
- Identify key legislative and other opportunities for targeted action to reduce inequalities in cancer care, including at both national and European level
- Convey political consensus and recommendations from politicians across Europe united in shared resolve to improve the fight against cancer in all European countries
For more information, please see our website: https://www.europeancancer.org/national-and-european-parliamentarians-for-cancer-actionCommunication activities
Principal policy activities of the European Cancer Organisation include:
As part of its 2024-27 Strategy, we convene 10 Focused Topic Networks on:
- Emergencies and Crises Network
- Research Policy Network
- Health Systems & Quality Cancer Care Network
- HPV and Hep B Action Network
- Prevention, Early Detection & Screening Network
- Survivorship and Quality of Life Network
- Digital Health Network
- Inequalities Network
- Workforce Network
The European Cancer Summit
The annual European Cancer Summit convenes over 500 leading representatives from across cancer policy communities (healthcare professions, patient organisations, governmental and regulatory audiences, commercial providers to the sectors) to debate and discuss pressing opportunities and threats for improving cancer care and outcomes. The meeting aims to signal consensus where possible via meeting resolutions, and elsewhere, allow controversies and difference of views to be aired and debated. Examples of passed resolutions at the European Cancer Summit include those relating to evaluation of quality cancer care, integration of primary and secondary care, tackling discrimination against cancer survivors and calling for policies to bring about the elimination of HPV caused cancers as a public health problem in Europe. More information here www.europeancancer.org.
Policy campaign activities
Throughout 2024, the European Cancer Organisation is leading series of pan-European cancer policy campaigns include:
- Time to Accelerate: Together Against Cancer https://www.europeancancer.org/timetoaccelerate
- Time to Accelerate: For Cancer Screening https://www.europeancancer.org/screening
- A Cancer Workforce in Crisis: https://www.europeancancer.org/workforce
- HPV Action
The Essential Requirements for Quality Cancer Care (ERQCCs)
From 2017, we have been publishing a series of consensus papers articulating healthcare professional and patient visions of what high quality care should be composed of. They include checklists and explanations of organisation and actions that are necessary to give high-quality care to cancer patients. They are written by European experts representing all disciplines involved in cancer care. Typically covering such issues as membership of the core and extended multidisciplinary teams, the agreed roles of each profession, patient information needs and much else, ERQCCs have been developed for: colorectal cancer, sarcoma, melanoma, oesophageal-gastric cancer, prostate cancer and primary care.
Patient Advisory Committee (PAC)
Our Patient Advisory Committee, comprised of representatives from 22 European and international level patient organisations, plays a central role in ensuring activities and policies of the organisation are strongly counselled from the patient perspective. With representation within our Board of Directors, many policy and activity proposals emanating from the PAC are taken forward with our 42 Member Societies. Examples in this respect have included the Essential Requirements for Quality Cancer Care: Primary Care, and the European Code of Cancer Practice.
We also conduct collaborative policy activities through alliance initiatives such as: the European Public Health Alliance, the Biomedical Alliance, the European Chronic Disease Alliance, the Union for International Cancer Control, and the Federation of European Academies of Medicine (FEAM).
Presently (March 2024) involved within EU funded collaborations:
4D PICTURE
ALTHEA - upcoming
CCI4EU
DESIPOC - upcoming
DigiCanTrain
ECHoS
EU NAVIGATE
EUonQOL
INTERACT100
MELODIC - upcoming
PRAISE-U
PROTECT-EUROPE
SANGUINE
smartCARE
SOLACE
STRONG-AYA
TOGAS
TRANSITIONOther activities
None declared
- Meetings
Meetings
12 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.
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Date 22 Jul 2024 Location Brussels Subject Right to be forgotten Cabinet Cabinet of Commissioner Mairead Mcguinness Attending - Patricia Reilly (Cabinet member)
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Date 16 Jul 2024 Location Strasbourg Subject Longevity, health and support to E.C.O as well as future priorities of the EU. Cabinet Cabinet of Vice-President Dubravka Šuica Attending - Dubravka Šuica (Vice-President)
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Date 09 Apr 2024 Location Videoconference Subject Europe’s Beating Cancer Plan; quality of life Cabinet Cabinet of Commissioner Stella Kyriakides Attending - Stella Kyriakides (Commissioner)
- Tove Ernst (Cabinet member)
Other Lobbyists -
Date 29 Jun 2023 Location Brussels Subject EU beating cancer Cabinet Cabinet of Vice-President Margaritis Schinas Portfolio Promoting the European Way of Life Attending - Maria Luisa Llano Cardenal (Cabinet member)
- Margaritis Schinas (Vice-President)
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Date 10 Oct 2022 Location Bruxelles Subject Working group on European Health Data Space Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Ralf Kuhne (Cabinet member)
Other Lobbyists -
Date 21 Sep 2022 Location Brussels Subject Europe’s Beating Cancer Plan and EU Policy on cancer Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
- Tove Ernst (Cabinet member)
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Date 09 Nov 2021 Location Brussels Subject Europe’s Beating Cancer Plan DG Health and Food Safety Attending - Sandra Gallina (Director-General)
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Date 07 Apr 2021 Location Brussels - virtual meeting Subject Exchange of views on Europe’s Beating Cancer Plan and its implementation with the European Cancer Organisation and its Member Societies and Patient Advisory Committee Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 23 Sep 2020 Location Brussels Subject The Commissioner delivers a speech at the launch of the European Code of Cancer Practice virtual event Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 27 May 2020 Location Brussels Subject VC meeting with 28 ECCO member societies and 17 patient advocacy groups to discuss Europe’s Beating Cancer Plan and the impact of COVID on cancer care and oncology patients Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 08 Jan 2020 Location Brussels Subject Discussion on cancer Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Tove Ernst (Cabinet member)
- Stella Kyriakides (Commissioner)
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Date 23 Mar 2018 Location Brussels Subject Next European Cancer Summit Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Annika Nowak (Cabinet member)
- Meetings