Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2021 - Dec 2021
Lobbyists (Full time equivalent)
3 Fte (5)
Lobbyists with EP accreditation
0
High-level Commission meetings
1
Lobbying Costs over the years
-
Info
European Federation of Allergy and Airways Diseases Patients' Associations (EFA)
EU Transparency Register
28473847513-94 First registered on 20 Dec 2011
Goals / Remit
The European Federation of Allergies and Airways Diseases Patients' Associations (EFA) is the European voice for over 200 million people living with allergies and airway diseases. We bring together 45 national associations from 26 countries and channel their knowledge and demands to European institutions. We connect stakeholders to ignite change and bridge the gaps between a wide range of policy issues to support more effective and comprehensive strategies – strategies that address the needs of our community. We strive to achieve greater patient participation in decision-making at local, national and European levels.
We represent all patients and people whose lives are, could be or will be affected by allergies and airway diseases. We collect and share their stories to inform policymakers, stakeholders and the wider public about the impact these conditions have on individuals and society. Our activities and projects aim to raise awareness and improve patients’ Quality of Life.Main EU files targeted
Health systems: medicines, vaccines, medical devices, clinical trials, Health Technology Assessment
Digitalisation: digital health, big data, artificial intelligence
Public health: tobacco and smoking, communicable diseases, health inequalities, health emergencies and crisis preparedness
Food: food information (allergen labelling), packaging, Farm-to-Fork Strategy, pesticides, biocides
Environment: indoor and ambient air quality, chemicals
Climate change: adaptation, mitigation, green-house gases, F-Gases, aeroallergens (pollen), biodiversity
Research agendaAddress
Head Office
Rue du Congrès, 35
Bruxelles 1000
BELGIUMEU Office
Rue du Congrès, 35
Bruxelles 1000
BELGIUMWebsite
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People
Total lobbyists declared
5
Employment time Lobbyists 100% 2 50% 1 25% 2 Lobbyists (Full time equivalent)
3
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 21 Nov 2024
Name Start date End Date Ms Isabel PROANO GOMEZ 30 Jan 2020 30 Jan 2021 Mr Panagiotis Minos CHASLARIDIS 30 Jan 2020 30 Jan 2021 Mr Panagiotis Minos CHASLARIDIS 07 Mar 2019 30 Jan 2020 Ms Isabel PROANO GOMEZ 20 Sep 2018 20 Sep 2019 Ms Caroline Heilpern 20 Sep 2018 06 Mar 2019 Roberta SAVLI 20 Mar 2017 01 Mar 2018 Ms Daniela Morghenti 10 Oct 2016 01 Oct 2017 Roberta SAVLI 04 Feb 2016 02 Feb 2017 Jelena MALININA 31 Mar 2015 27 Mar 2016 Roberta SAVLI 18 Feb 2015 04 Feb 2016 Roberta SAVLI 05 Feb 2014 04 Feb 2015 Roberta SAVLI 05 Feb 2014 27 Jan 2015 Roberta SAVLI 02 Feb 2013 01 Feb 2014 Roberta SAVLI 23 Jan 2012 08 Feb 2013 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
EFA has full membership with patient organisations such as:
- the European Patients’ Forum (EPF), the umbrella association of patients’ organisation at the European level
- the Global Asthma and Allergy Patient Platform (GA²P²)
- the International Alliance of Dermatology Patients Organisations (IADPO – Global Skin)
- the European Lung Health Group (ELHG)
Medical organisations such as:
- the International Primary Care Respiratory Group (IPCRG), as an associate Member
- the European Lung Foundation (ELF) as member of the Patient Advisory Committee
- the Global Alliance against Chronic Respiratory Diseases (GARD) as founding member
- the Global Allergy and Asthma European Network (GA²LEN) and International Coalition of COPD Organisations (ICC)
Public health organisations such as:
- the Health and Environment Alliance (HEAL)
- the European Network for Smoking and Tobacco Prevention (ENSP) as an associate Member
- the Patient Access Partnership (PACT)
- the EU4Health Civil Society Alliance (EU4Health CSA)
In its daily activities, EFA is constantly in contact with other key stakeholders working in Brussels in the field of public health and environment.
Furthermore, EFA has a wide network of contacts and other stakeholders:
- the European Academy of Allergy and Clinical Immunology (EAACI), in which EFA is Member of the Patients Organisations Committee
- the European Respiratory Society (ERS), in which EFA is Member of the Patient Advisory Groups on Asthma and COVID-19
- the Global Initiative for Asthma (GINA), as GINA advocates
- the Global Initiative for Chronic Obstructive Lung Disease (GOLD)
- the Pharmaceutical Group of the European Union (PGEU)
- the European Hospital and Healthcare Federation (HOPE)
- the Allergic Rhinitis and its Impact on Asthma (ARIA)Member organisations
None declared
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Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2021 - Dec 2021
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
1,047,567€
Major funding types in closed year
EU funding, Member's contribution, Donations, Grants
Major contributions in closed year
None declared
Other financial info
https://www.efanet.org/annual-report/2021/financials/transparency-and-acknowledgements
Total budget (2021): 1,047,567 €:
- public financing: 16,830 € (EU project grants under Horizon 2020)
- from other sources: 450,000 €
- member fees: 14,000 €
- grants for EFA projects: 835,238 €
- honoraria for advisors: 5,660 €
Operating programme
Membership fees
EUR 14,000
Membership fees 14,000 € 1,34%
Grants
EUR 450,000
Abbvie 30,000 € 7% 2,88%
Aimmune 30,000 € 7% 2,88%
Astra Zeneca 30,000 € 7% 2,88%
Boehringer Ingelheim 30,000 € 7% 2,88%
Chiesi 30,000 € 7% 2,88%
DBV Technologies 30,000 € 7% 2,88%
GSK 30,000 € 7% 2,88%
LEO Pharma 30,000 € 7% 2,88%
MSD 30,000 € 7% 2,88%
Novartis 30,000 € 7% 2,88%
OM Vifor Pharma 30,000 € 7% 2,88%
Pfizer 30,000 € 7% 2,88%
Regeneron 30,000 € 7% 2,88%
Roche 30,000 € 7% 2,88%
Sanofi Genzyme 30,000 € 7% 2,88%
EFA project programme:
Atopic Eczema Consensus Europe
- Abbvie 41,433 € 5% 3,98%
- Leo Pharma 41,433 € 5% 3,98%
- Sanofi/Regeneron 41,433 € 5% 3,98%
BREATHE Coalition
- Astra Zeneca 29,920 € 4% 2,87%
- Boehringer Ingelheim 29,920 € 4% 2,87%
- Chiesi 29,920 € 4% 2,87%
- GSK 29,920 € 4% 2,87%
- Roche 29,920 € 4% 2,87%
- Breathe Coalition Deferred Income from 2020 5,000 € 1% 0,48%
Capacity Building
- Astra Zeneca 38,225 € 5% 3,67%
- Chiesi 25,483 € 3% 2,45%
- Novartis 25,483 € 3% 2,45%
- Deferred income from 2020 5,000 € 1% 0,48%
DIG_IT
- Astra Zeneca 76,371 € 9% 7,33%
- Chiesi 76,371 € 9% 7,33%
- MSD 76,371 € 9% 7,33%
- OM Pharma 76,371 € 9% 7,33%
- Roche 76,371 € 9% 7,33%
Deferred Income from 2020 25,000 € 3% 2,40%
Interest Group
- Chiesi 15,106 € 2% 1,45%
- GSK 15,106 € 2% 1,45%
- Sanofi/Regeneron 15,106 € 2% 1,45%
Deferred Income from 2020 5,000 € 1% 0,48%
Deferred income 2021 to EFA Projects 2022 -169.076 -
EU Structures
Groups (European Commission)
Zero Pollution Stakeholder Platform#E03790#https://ec.europa.eu/transparency/expert-groups-register/screen/expert-groups/consult?lang=en&groupID=3790 #Member #C#Civil society
Groups (European Parliament)
European Parliament Interest Group on Allergy and Asthma (informal group: https://allergyasthmaparliament.eu/)
European Parliament MEP Lung Health Group (informal group: https://www.ersnet.org/advocacy/mep-lung-health-group/)Communication activities
Policy event ‘Towards a European Health Union - BREATHE Vision for the future’, 27/01/2021 (as member of the European Lung Health Group), for the launch of BREATHE Vision 2030
Other activities
None declared
Meetings
Meetings
1 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.
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Date 15 May 2018 Location Brussels Subject HTA Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Vytenis Andriukaitis (Commissioner)
- Annika Nowak (Cabinet member)
Other Lobbyists