Download this datacard
Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2020 - Dec 2020
Lobbyists (Full time equivalent)
7.25 Fte (8)
Lobbyists with EP accreditation
0
High-level Commission meetings
6
Lobbying Costs over the years
-
Info
European Cancer Patient Coalition (ECPC)
EU Transparency Register
57929627082-79 First registered on 07 Nov 2011
Goals / Remit
Anticipating and participating in the legislative and policy changes taking place at EU level (EU Parliament and European Commission);
Raising awareness about initiatives affecting cancer patients;
Providing decision makers with a first-hand patient experience.Main EU files targeted
Health Technology Assessment
Access to Medicines
Adaptive Pathways
EU Beating Cancer Plan
EU Health Data Space
GDPR
BECA report
Directive on patients’ rights in cross-border healthcare
EU4Health Programme
Pharmaceuticals StrategyAddress
Head Office
Avenue des Arts 6
Brussels 1210
BELGIUMEU Office
Avenue des Arts 6
Brussels 1210
BELGIUMWebsite
-
People
Total lobbyists declared
8
Employment time Lobbyists 100% 7 25% 1 Lobbyists (Full time equivalent)
7.25
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 22 Nov 2024
Name Start date End Date Ms Adela Maghear 14 Jul 2022 06 Dec 2022 Mr Alexander RODRIGUEZ TIMARAN 14 Jul 2022 06 Dec 2022 Eleonora VARNTOUMIAN 03 Jun 2022 03 Dec 2022 Antonella CARDONE 06 Feb 2020 06 Feb 2021 Ms Charis Girvalaki 05 Feb 2020 05 Feb 2021 Mr Thomas BARLOW 09 Nov 2019 07 Nov 2020 Matias OLSEN 29 Aug 2019 29 May 2020 Mr Aleksandras Filicevas 15 Dec 2018 14 Dec 2019 Antonella CARDONE 15 Dec 2018 14 Dec 2019 Ms Lydia Elizabeth Makaroff 13 Nov 2018 13 Nov 2019 Mr Alberto OLIAS IBOR 13 Nov 2018 14 Dec 2018 Ms Kallirroi PAVLAKOU 13 Nov 2018 11 May 2019 Ms Anna Teresa Rek 20 Sep 2018 23 Jan 2019 Mr Max SCHRAVENDEEL 20 Sep 2018 20 Sep 2019 Mr Federico BISCOTTI 24 Apr 2018 01 Nov 2018 Eleonora VARNTOUMIAN 24 Apr 2018 26 Sep 2018 Ms Isabell Ellen Manneh 14 Apr 2018 13 Apr 2019 Mr Yfantis THEODOROS 14 Apr 2018 01 Nov 2018 Mr Aleksandras Filicevas 02 Dec 2017 02 Dec 2018 Ms Elena ALBERTI 01 Dec 2017 14 Apr 2018 Ms Lydia Elizabeth Makaroff 08 Nov 2017 08 Nov 2018 Mr Francesco Florindi 27 Jun 2017 01 Dec 2017 Ms Anna Teresa Rek 24 Mar 2017 22 Mar 2018 Mr Alberto José DOMINGO BAYARRI 23 Mar 2017 01 Dec 2017 Ms Isabell Ellen Manneh 03 Dec 2016 02 Dec 2017 Ms Kalliopi Christoforidi 22 Oct 2016 21 Oct 2017 Ms Lydia Elizabeth Makaroff 10 Oct 2016 07 Oct 2017 Mr Francesco Florindi 20 May 2016 20 May 2017 Ms Anna Teresa Rek 13 Jan 2016 13 Jan 2017 Ms Mihaela Militaru 11 Nov 2015 11 Oct 2016 Ms Kalliopi Christoforidi 10 Nov 2015 22 Oct 2016 Mr Francesco Florindi 23 May 2015 20 May 2016 Ms Elena Raluca Nicolae 15 Mar 2014 13 Feb 2015 Ms Mihaela Militaru 15 Nov 2014 11 Nov 2015 Ms Kalliopi Christoforidi 12 Nov 2014 10 Nov 2015 Mr Francesco Florindi 20 Mar 2014 19 Mar 2015 Mrs Elena Raluca Nicolae 15 Mar 2014 27 Jan 2015 Ms Thi Anh Anh Tran 19 Nov 2013 01 Mar 2014 Ms Kalliopi Christoforidi 16 Nov 2013 12 Nov 2014 Ms Mihaela Militaru 16 Nov 2013 15 Nov 2014 Denis HORGAN 08 Nov 2012 12 Nov 2012 Mr Erik Briers 06 Oct 2012 17 Jul 2013 Denis HORGAN 06 Oct 2012 26 Oct 2012 Nicola COLSON 30 Mar 2011 06 Oct 2012 Ms Francesca Paganucci 15 May 2012 17 Jul 2012 Ms Kolia Benie 15 May 2012 07 Jul 2012 Nicola COLSON 15 May 2012 07 May 2013 Mr Martin LOHR 17 Jan 2012 05 May 2012 Complementary Information
7 Board members plus ECPC Secretariat Staff (1 Director, 2 Senior EU Affairs Manager, 1 Health & Research Manager, 1 Junior Financial Officer, 1 Project Coordinator, 1 Partnerships and Communication Officer, 1 Senior Partnership and Communication Manager, 1 Junior Project Coordinator, 2 Partnership and Communication Assistants, 1 Legal expert, 1 Administrative Manager, 1 Administrative Assistant).
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
-
Categories
Category
Non-governmental organisations, platforms and networks and similar
-
Networking
Affiliation
EPPOSI; EUnetHTA; European Health Policy Forum; EFPIA Think Tank; UICC; ESMO; RCE; EU4Health CSA; TBCT; ERN-EURACAN; Healthy Europe.
Member organisations
None declared
-
Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2020 - Dec 2020
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
1,747,624€
Major funding types in closed year
Other, EU funding, Grants
Funding types "other" information
Major contributions in closed year
Type Name Amount Grant H2020 320,000€ Major contributions in current year
Type Name Amount Grant H2020 266,338€ Other financial info
None declared
-
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
Cancer
Communication activities
* White Paper on Access to Innovation in Oncology
* European Cancer Patient Organisation General Meeting
* Position on draft report on EU options for improving access to medicinesOther activities
None declared
Meetings
Meetings
6 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.
-
Date 08 Apr 2021 Location online Subject Health Union Cabinet Cabinet of Vice-President Margaritis Schinas Portfolio Promoting the European Way of Life Attending - Margaritis Schinas (Vice-President)
- Catherine Sustek (Cabinet member)
Other Lobbyists -
Date 25 May 2020 Location Brussels Subject VC meeting: EU's Cancer Plan, funding related to cancer and the challenges cancer patients face during COVID-19 Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
-
Date 05 Feb 2020 Location Brussels Subject Discussion on Cancer and Europe's Beating Cancer Plan Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
- Tove Ernst (Cabinet member)
Other Lobbyists -
Date 20 Jan 2020 Location Brussels Subject Discussion on cancer Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Tove Ernst (Cabinet member)
- Stella Kyriakides (Commissioner)
Other Lobbyists -
Date 15 May 2018 Location Brussels Subject HTA Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Vytenis Andriukaitis (Commissioner)
- Annika Nowak (Cabinet member)
Other Lobbyists -
Date 02 Feb 2015 Location Brussels Subject EU ACTION ON CANCER, GUIDELINES, JOINT ACTIONS, PRICING OF CANCER DRUGS AND INEQUALITIES, CROSS -BORDER HEALTH CARE DIRECTIVE Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Paula Duarte Gaspar (Cabinet member)
- Vytenis Andriukaitis (Commissioner)