Foundation of Borys the Hero

1. Development of social activity in the field of activities for people and families affected by rare diseases, with particular emphasis on leukodystrophy.

2. Building a conscious and inclusive society, as well as social awareness, in particular on the challenges and needs of people and families affected by rare diseases, as well raising awareness about available and experimental methods of diagnosis, treatment, rehabilitation, education and professional activity of people and families affected by rare diseases.

3. Supporting solutions and systemic activity devoted to rare diseases as well as issues of disability and people with disabilities, as well as issues related to social inclusion, counteracting discrimination and preventing unequal treatment.

Proposal for a REGULATION OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL laying down Union procedures for the authorisation and supervision of medicinal products for human use and establishing rules governing the European Medicines Agency, amending Regulation (EC) No 1394/2007 and Regulation (EU) No 536/2014 and repealing Regulation (EC) No 726/2004, Regulation (EC) No 141/2000 and Regulation (EC) No 1901/2006

Proposal for a DIRECTIVE OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL on the Union code relating to medicinal products for human use, and repealing Directive 2001/83/EC and Directive 2009/35/EC

http://fundacjabb.pl

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No lobbyists with EP accreditations

None declared

Data not provided by Register Secretariat due to GDPR

Data not provided by Register Secretariat due to GDPR

Non-governmental organisations, platforms and networks and similar

Public financing