Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2023 - Dec 2023
Lobbyists (Full time equivalent)
4.45 Fte (7)
Lobbyists with EP accreditation
0
High-level Commission meetings
2
Lobbying Costs over the years
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Info
Youth Cancer Europe (YCE)
EU Transparency Register
988772631423-40 First registered on 02 May 2018
Goals / Remit
Youth Cancer Europe is a pan-European, impact-driven patient advocacy network, representing young people aged 18-39 from 40+ European countries with a track record of shaping EU policies on cross-border healthcare, financial discrimination, fertility preservation, reproductive rights, mental health and health equity; influencing legislative changes EU-wide as well as on the local level across different healthcare systems, with a keen focus on supporting the needs of marginalised, minority and protected populations across the EU.
Main EU files targeted
Areas of EU Health and Research currently followed by Youth Cancer Europe are: Cancer; Rare diseases, Heath systems and services, Personalised medicine, Environment and Health, Public Health, Global Partnership
Youth Cancer Europe also follows the following EU initiatives and actions: Horizon 2020, Innovative Medicines Initiative, Patients’ rights in Cross-border healthcare, European Reference Networks, eHealth, Health Technology Assessment, Health systems performance assessment as well as initiatives in the areas of Promoting good health, Nutrition and physical activity and Mental health and the legislative area of Pharmaceuticals and medical devices.Address
Head Office
Calea Manastur 42B
Cluj-Napoca 400 372
ROMANIAEU Office
Calea Manastur 42B
Cluj-Napoca 400 372
ROMANIAWebsite
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People
Total lobbyists declared
7
Employment time Lobbyists 100% 3 75% 1 50% 1 10% 2 Lobbyists (Full time equivalent)
4.45
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 25 Nov 2024
Name Start date End Date Ms Katalin RIZVINE LEHOCZKY 04 Sep 2018 01 Sep 2019 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
YCE is not a member of any umbrella organisations
YCE is collaborating in the following networks:
- https://wecanadvocate.eu
- https://www.europeancancer.org (several focused topic networks)
- https://www.euhealthcoalition.euMember organisations
www.youthcancereurope.org/network/
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Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2023 - Dec 2023
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
591,952€
Major funding types in closed year
Donations, EU funding, Grants
Major contributions in closed year
Type Name Amount Contribution ONCODIR - see above 72,374€ Contribution smartCARE - see above 11,222€ Contribution ONCOSCREEN 2023 - see above 51,108€ Grant H2020 Grant Agreement number 945153 - FORTEe 2,387€ Grant HORIZON Grant Agreement number 101097036 - ONCOSCREEN 51,108€ Grant EU4H Grant Agreement Number 101080046 - PROTECT EUROPE 2,516€ Grant EU4H Grant Agreement No. 101080048 - smartCARE 11,222€ Grant HORIZON Grant Agreement number 101104777 - ONCODIR 72,374€ Other financial info
None declared
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EU Structures
Groups (European Commission)
None declared
Groups (European Parliament)
Cancer
Communication activities
Relevant projects:
Youth Cancer Europe Open Space Summit 2014, Bucharest
Youth Cancer Europe Advocacy Masterclass 2015, Cluj-Napoca
Youth Cancer Europe @ Untold Music Festival manifestation 2015
Youth Cancer Europe Patient Summit 2017, Vilnius
YCE Structured Training on the Fundamentals of EU Policymaking, 2018 Brussels
European Parliament policy event on financial discrimination of long term cancer survivors, October 2018, Brussels
Youth Cancer Europe Leadership Summit, July 2019, Budapest
European Parliament policy event on cross border health, November 2019, Brussels
European Beating Cancer Plan public consultation launch, Key note speech in European Parliament Hemicycle, February 2020
European Parliament BECA hearing, January 2021 (Fertility / Mental Health)
European Parliament BECA hearing, April 2021 (Cross Border Health)
EPP hearing (The Right to Be Forgotten), May 2021
Cancer & Fertility: a YCE advocacy project, 2021 - 2022
Cancer in time of war: Ukraine war crisis response operations, 2022
2023 Peer Visits as research method for Youth with lived experience
2023 Youth Cancer Europe participates in EU’s Cancer Mission Consultations
2023 YCE’s Nicola Unterecker speaks at the European Commission’s World Mental Health Day Conference
2023 Youth Cancer Europe hosted the From Prejudice to Progress: Discrimination, Equity, Diversity & Inclusion Round Table and Workshops event
2023 YCE conducts 5 hospital Peer Visits in Europe
2023 YCE in a Policy Dialogue on mental health with EU Health Commissioner
2023 YCE speaks at the Swedish Presidency EU event for World Cancer Day
2024 Unveiling the “Recommendation and Implementation Roadmap for Minimum Standards of Specialist Adolescent and Young Adult (AYA) Cancer Care Units” Position Paper
2024 Youth Cancer Europe’s Webinar on Equity, Diversity, and Inclusion in Cancer Care
2024 Recommendations for Equitable, Diverse, and Inclusive Cancer Care launched at the European Parliament
Relevant PR & Communication Activities as well as publications:
Open Space Summit Key Outcomes Report 2014 December
The Role of Youth in Cancer Policy, YouTube videos since 2016
Young cancer patients advocate for improved care September 5, 2017 article in The BMJ
Youth Cancer Europe: White Paper, October 2018
Chemo Brain: Cancer & Mental Health Webinar, January 2021
Cannabis & Cancer: Let's Clear the Smoke! Webinar, April 2021
2023 YCE speaks at the Swedish Presidency EU event for World Cancer Day
2024 Unveiling the “Recommendation and Implementation Roadmap for Minimum Standards of Specialist Adolescent and Young Adult (AYA) Cancer Care Units” Position Paper
2024 Youth Cancer Europe’s Webinar on Equity, Diversity, and Inclusion in Cancer Care
2024 Recommendations for Equitable, Diverse, and Inclusive Cancer Care launched at the European ParliamentOther activities
None declared
Meetings
Meetings
2 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.
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Date 08 Apr 2021 Location online Subject Health Union Cabinet Cabinet of Vice-President Margaritis Schinas Portfolio Promoting the European Way of Life Attending - Catherine Sustek (Cabinet member)
- Margaritis Schinas (Vice-President)
Other Lobbyists -
Date 23 May 2018 Location Brussels Subject Actions on Cancer, access to care Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Arunas Vinciunas (Cabinet member)
- Alina Timofte (Cabinet member)