Overview
Lobbying Costs
100,000€ - 199,999€
Financial year: Jul 2022 - Jun 2023
Lobbyists (Full time equivalent)
3 Fte (4)
Lobbyists with EP accreditation
2
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
Pancreatic Cancer Europe (PCE)
EU Transparency Register
791220833072-74 First registered on 08 Nov 2018
Goals / Remit
Pancreatic Cancer Europe is a European multi-stakeholder platform which aims at bringing together experts from all over Europe including academics, physicians, politicians, patient groups, journalists and industry with a common interest and willingness to improve care for patients with pancreatic cancer.
Pancreatic Cancer Europe aims at bringing together relevant stakeholders to advocate for an improvement in the standard of care for patients with pancreatic cancer, by addressing the existing gaps related to the lack of awareness, diagnosis and data collection. Spun off by a strong political will to address the devastating impact of pancreatic cancer, Pancreatic Cancer Europe aims at reversing the trend of pancreatic cancer impact by: Increasing PC research and political support; Raising lay and medical awareness by developing awareness tools and campaigns; Enabling a forum of exchange between national stakeholders.Main EU files targeted
Joint Actions on the field of cancer, including European Partnership Action Against Cancer (EPAAC), Joint Action on Cancer Control, Innovative Partnership for Action Against Cancer (iPAAC).
Address
Head Office
Square Ambiorix 10
Bruxelles 1000
BELGIUMEU Office
Square Ambiorix 10
Bruxelles 1000
BELGIUMWebsite
-
People
Total lobbyists declared
4
Employment time Lobbyists 75% 4 Lobbyists (Full time equivalent)
3
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
2 accreditations were / are live (in bold) for the selected state of 05 Jan 2025
Name Start date End Date Lucia Colonna 22 Nov 2024 22 Nov 2025 Maria Luisa Pagano 22 Nov 2024 22 Nov 2025 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
-
Categories
Category
Non-governmental organisations, platforms and networks and similar
-
Networking
Affiliation
World Pancreatic Cancer Coalition
All.Can
Inspire2live
European Cancer Organisation
European Society of Digestive Oncology
Workgroup of European Cancer Patient Advocacy Networks - WECANMember organisations
None declared
-
Financial Data
Interests represented
Promotes their own interests or the collective interests of their members
Closed financial year
Jul 2022 - Jun 2023
Lobbying costs for closed financial year
100,000€ - 199,999€
Major contributions in closed year
None declared
Intermediaries for closed year
None declaredIntermediaries for current year
None declaredClosed year Costs
100,000€ - 199,999€
Other financial info
None declared
-
EU Structures
Groups (European Commission)
None declared
Groups (European Parliament)
Cancer
Communication activities
Pancreatic Cancer 2019 Elections Manifesto;
Inequality Report in the European Union;
Heatmap on pancreatic cancer policies;
Awareness events on 2016 and 2018 in the European Parliament;
On line Awareness events on 2020 and 2021 on World Pancreatic Cancer Day with the support of the EU Parliamentary Intergroup Challenge Cancer
European Parliament event on 15 November 2022 The Neglected Heavy Burden: Pancreatic & Gastric Cancers hosted by MEP Cristian-Silviu Busoi
On line awareness event on 17 November 2022 The importance of pancreatic cancer’s early detection in the frame of World Pancreatic Cancer Day with the support of MEP Tomislav Sokol
Webinar on Tuesday, 28 February 2023 The European Health Technology Assessment Regulation: the political will
2nd Multistakeholder Brainstorming Meeting in Madrid, Spain at Spanish National Cancer Research Centre (CNIO) on 26 May 2023 - PANCREATIC CANCER RESEARCH IN EUROPE: WHERE DO WE STAND AND WHICH SHOULD BE THE PRIORITIES?
Multi-Stakeholder Meeting on Tuesday, 14 November 2023 in Bruxelles, Belgium - Drug Repurposing, an Attractive Strategy in Pancreatic Cancer Treatment?
Webinar on Tuesday, 21 November 2023 - Physical Activities for Pancreatic Cancer Patients
Position Paper for 2024 EU Elections - Pancreatic Cancer Across Europe
Multistakeholder brainstorming meeting on access to treatment "GETTING OUR ACT TOGETHER", 25 June 2024, Santiago de Compostela (Spain)
Roundtable at the EPC Meeting “Gaps and fragmentation of pancreatic cancer patients’ management across Europe: the PancreOS project results”, 27 June 2024, Santiago de Compostela (Spain)
Pancreatic Cancer Congress, Karolinska Institutet (PanCKI), 19 and 20 November 2024, Campus Flemingsberg, Stockholm (Sweden)
Webinar "The Importance of Emotional Support for Pancreatic Cancer Patients", 28 November 2024Other activities
None declared
Meetings
Meetings
None declared