PanCare

https://www.pancare.eu/partners/

None declared

Does not represent commercial interests

Jan 2023 - Dec 2023

Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

117,000€

None declared

None declared

Cancer

EU-funded research projects and synergies with EU-funded networks:

PanCare projects:
PanCare Childhood and Adolescent Cancer Survivor Care and Follow-Up Studies (PanCareSurFup, FP7- funded): the PanCareSurFup consortium consisted of 16 European institutions in 11 countries, and carried out research studies into late effects of treatment for cancer, established guidelines for follow-up, and disseminated the results and provided training and workshops for stakeholders.

PanCare Studies in Fertility and Ototoxicity to Improve Quality of Life after Cancer during Childhood, Adolescence and Young Adulthood (PanCareLIFE, FP7-funded): PanCareLIFE was a 5-year (2013-8) EU Framework 7 Programme in the Health Theme that studied the impact of treatment regimes on the long-term health of childhood cancer survivors. Specifically, PanCareLIFE evaluated the risks of impairments in female fertility, in hearing, and in quality of life. PanCareLIFE also developed two guidelines for fertility preservation, and will disseminate widely the results from this project.

PanCareFollowUp: Novel, patient-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for survivors and caregivers (PanCareFollowUp, EU-horizon 2020 funded): PanCareFollowUp is an EU-funded project looking at how to best deliver survivorship care to survivors of childhood and adolescent cancer in Europe. The aim of PanCareFollowUp is to deliver care according to recently developed guidelines using an innovative model for person centred care that empowers survivors and supports self-management

PanCare studies of the scale-up and implementation of the digital Survivorship Passport to improve person-centred care for childhood cancer survivors (PanCareSurPass, EU-Horizon 2020 funded): PanCareSurPass is an EU-funded project looking at how to more widely implement the digital Survivorship Passport (SurPass) to improve survivorship care for survivors of childhood and adolescent cancer in Europe. PanCareSurPass will develop, test and implement the SurPass in participating countries and will develop material to support implementation in other countries

PanCare partner projects
European Network for Cancer Research in Children and Adolescents (ENCCA, FP7-funded): In the ENCCA project the survivorship passport was developed, which provides survivors and HCPs with access to a detailed medical history

European Expert Paediatric Oncology Reference Network for Diagnostics and Treatment (ExPO-r-Net FP7-funded): ExPO-r-Net further developed the SurPass, as well as translated recommendation brochures

European Reference Network on Paediatric Cancer (ERN PaedCan, EU Health-funded): The ERN aims to facilitate long-term follow-up and implement tools like the SurPass. Through our common partners, we will share knowledge and exploit synergies. The ERN CPMS will also be used to support clinical teams delivering the PanCareFollowUp Care intervention

EU Joint Action on Rare Cancers (JARC, EU Health-funded, SIOP-E, CCI Europe, PanCare): PanCare led on survivorship issues and made recommendations on models of care for survivors, including long-term follow-up, transition to adult care, and the use of the SurPass

UNICA4EU (European Union’s Call for Pilot Projects and Preparatory Actions (PPPA), SIOPE): map the current landscape of Artificial Intelligence (AI) applications for Childhood Cancer to understand how AI can help improve care pathways in the EU

EU-CAYAS-NET (EU4Health, partner): European Network of Youth Cancer Survivors to map the existing resources that are helpful to young cancer patients, survivors and their caregivers, to create new European guidelines and empower cancer survivors to advocate for their rights and needs

SmartCARE (EU4Health, partner) WP-lead. smartCARE is developing a ‘Cancer Survivor Smart Card’. This digital tool decreases the communication gap between survivors and health and social-care providers

SIOPE, CCI-E and PanCare ‘Gold Ribbon Campaign’ on Childhood Cancer Awareness Month in 2020.

European Parliament was lit in ‘gold’ from 1. to 7. of September 2020 in honour of ‘Childhood Cancer Awareness Month’.

Long term cooperation and active dialogue with wide range of MEPs on childhood cancer survivor challenges and needs in Europe.

1 meetings found. Download meetings

The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.

• Date	18 May 2021	Location	Brussels, virtual
  Subject	Exchange of views on the implementation of Europe’s Beating Cancer Plan in paediatric oncology
  Cabinet	Cabinet of Commissioner Stella Kyriakides
  Portfolio	Health
  Attending	Stella Kyriakides (Commissioner)
  Other Lobbyists	Childhood Cancer International - Europe European Society for Paediatric Oncology