Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2023 - Dec 2023
Lobbyists (Full time equivalent)
1.25 Fte (2)
Lobbyists with EP accreditation
2
High-level Commission meetings
2
Lobbying Costs over the years
-
Info
KickCancer
EU Transparency Register
768588825862-96 First registered on 13 Feb 2017
Goals / Remit
La fondation a pour buts désintéressés de soutenir, au niveau belge et international, la recherche scientifique, clinique et fondamentale, dans le domaine des cancers pédiatriques et plus généralement, de favoriser et de développer toutes activités en vue de la guérison des cancers pédiatriques et du suivi médical des traitements, avant et après la guérison.
Main EU files targeted
Paquet Pharmaceutique
Règlement pédiatrique européen
Règlementation relative aux essais cliniques
Règlement relatif à l'organisation de l'EMA
Règlement relatif aux maladies orphelines
Règlement sur le SPC
Mission Cancer
Europe's Beating Cancer Plan
Cross Border Health Directive
European Health Data Space
Clinical Trials RegulationAddress
Head Office
Avenue des Arts 50
Bruxelles 1000
BELGIUMEU Office
Avenue des Arts 50
Brussels 1000
BELGIUMWebsite
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People
Total lobbyists declared
2
Employment time Lobbyists 75% 1 50% 1 Lobbyists (Full time equivalent)
1.25
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
2 accreditations were / are live (in bold) for the selected state of 14 Mar 2025
Name Start date End Date Delphine Heenen 01 Sep 2024 01 Sep 2025 Marine Véronique I Gouders 17 Oct 2024 16 Oct 2025 Marine GOUDERS 25 Oct 2023 04 Oct 2024 Marine GOUDERS 27 Oct 2022 25 Oct 2023 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
-
Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
CCI Europe (https://ccieurope.eu)
FIGHT KIDS CANCER (no web page yet)Member organisations
Aucune organisation n'est membre; seulement quatre fondateurs personnes physiques
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Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2023 - Dec 2023
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
2,640,000€
Major funding types in closed year
Donations
Major contributions in closed year
Type Name Amount Contribution Elysara SPRL 320,000€ Other financial info
None declared
-
EU Structures
Groups (European Commission)
None declared
Groups (European Parliament)
N/A
Communication activities
Communication relative aux lacunes du Règlement pédiatrique européen et du règlement relatif aux maladies orphelines
Discussions au sein de l'EMA pour des projets du type IMI, AdaptSmart
Participation à des conférences relatives aux cancers pédiatriques, au cancer et à la santé en général
Réunions avec des députés européens pour promouvoir les priorités et les demandes de la communauté du cancer pédiatriqueOther activities
None declared
Meetings
Meetings
2 meetings found. Download meetings
The list below covers meetings with Commissioners/Cabinet members/Directors-general (high-level) Commission meetings published December 2014 to December 2024, and the meetings of Commissioners/Cabinet members/Directors-general and officials holding "management functions" in the Commission published since 1 January 2025. Other lobby meetings with lower-level staff may well have taken place, but the Commission doesn't proactively publish information about these meetings. All information below comes from the Commission and not from the registrant.
1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.
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Date 04 Dec 2023 Location Brussels Subject Meeting on stimulating medicines development in paediatric oncology DG Health and Food Safety Attending - Sandra Gallina (Director-General)
Other Lobbyists -
Date 22 Mar 2018 Location Brussels Subject Paediatric medicines Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Annika Nowak (Cabinet member)