Overview
Lobbying Costs
400,000€ - 499,999€
Financial year: Jan 2023 - Dec 2023
Lobbyists (Full time equivalent)
2 Fte (2)
Lobbyists with EP accreditation
2
High-level Commission meetings
4
Lobbying Costs over the years
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Info
European Alliance of Associations for Rheumatology (EULAR)
EU Transparency Register
89158218867-92 First registered on 01 Jun 2012
Goals / Remit
The European Alliance of Associations for Rheumatology (EULAR) is the umbrella organization representing national patient organizations, health professionals’ and scientific societies of rheumatology across Europe. EULAR endeavours to stimulate, promote, and support research, prevention, treatment and rehabilitation of rheumatic diseases, as well as the inclusion of people with rheumatic and musculoskeletal diseases in social and economic life. In line with UEMS, EULAR defines rheumatology as including rheumatic diseases of the connective tissue, locomotor and musculoskeletal system.
Main EU files targeted
Mental health strategy, Disability strategy, pharmaceutical strategy, Beating Cancer, European Health Data Space, Horizon Europe, Towards a Common European Action on Care Report, Non-Communicable Diseases Initiative (NCDI).
Address
Head Office
Seestrasse, 240
Kilchberg 8802
SWITZERLANDEU Office
Seestrasse, 240
Kilchberg 8802
SWITZERLANDWebsite
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People
Total lobbyists declared
2
Employment time Lobbyists 100% 2 Lobbyists (Full time equivalent)
2
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
2 accreditations were / are live (in bold) for the selected state of 22 Dec 2024
Name Start date End Date Alexandru Oancea 16 Oct 2024 15 Oct 2025 Alexandra Sharma 24 Sep 2024 23 Sep 2025 Neil BETTERIDGE 14 Jan 2020 01 Feb 2021 Neil BETTERIDGE 17 Nov 2018 16 Nov 2019 Neil BETTERIDGE 05 Oct 2017 05 Oct 2018 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
BioMed Alliance
International League of Associations for Rheumatology (ILAR)
European Union of Medical Specialists
European Chronic Diseases Alliance (ECDA)Member organisations
None declared
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Financial Data
Interests represented
Promotes their own interests or the collective interests of their members
Closed financial year
Jan 2023 - Dec 2023
Lobbying costs for closed financial year
400,000€ - 499,999€
Major contributions in closed year
Type Name Amount Grant SQUEZZE 218,527€ Grant Hippocrates 17,971€ Grant STRATA-FIT 123,248€ Intermediaries for closed year
Name Amount hekla communications 300,000€ - 399,999€ Intermediaries for current year
Name hekla communications Closed year Costs
400,000€ - 499,999€
Other financial info
Hippocrates:
-Funding received in 2023 in EUR: 17’971.15
-Contributing to operating costs in 2023 in EUR: 10’431.16
SQUEZZE:
-Funding received in 2023 in EUR: 218’527.25
-Contributing to operating costs in 2023 in EUR: 70’875.91
STRATA-FIT:
-Funding received in 2023 in EUR: 123’248.85
-Contributing to operating costs in 2023 in EUR: 20’979.19
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EU Structures
Groups (European Commission)
None declared
Groups (European Parliament)
Unofficial groupings
Communication activities
Press releases, statements, media activities (Politico, Euractiv), social media activities, meetings.
Other activities
None declared
Meetings
Meetings
4 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.
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Date 12 Jan 2021 Location Brussels, virtual meeting Subject Presentation of EULAR and exchange of views on the challenges of people and patients with RMDs in the context of the Pharmaceutical Strategy Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Karolina Herbout-Borczak (Cabinet member)
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Date 15 Oct 2020 Location Brussels Subject Rheumatic Muskuloskeletal Diseases, occupational health and safety DG Employment, Social Affairs and Inclusion Attending - Joost Korte (Director-General)
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Date 29 Nov 2016 Location Brussels Subject Health and Safety at work Cabinet Cabinet of Commissioner Marianne Thyssen Portfolio Employment, Social Affairs, Skills and Labour Mobility Attending - Inge Bernaerts (Cabinet member)
Other Lobbyists -
Date 13 Oct 2016 Location Brussels Subject Prevention and diagnosis of rheumatic diseases, co-operation EULAR - Commission Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Vytenis Andriukaitis (Commissioner)
- Paula Duarte Gaspar (Cabinet member)