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Overview
Lobbying Costs
37,500€
Financial year: Jan 2020 - Dec 2020
Lobbyists (Full time equivalent)
0.25 Fte (1)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
European Society for Immunodeficiencies (ESID)
EU Transparency Register
173481643554-55 First registered on 15 Jul 2021
Goals / Remit
The European Society for Immunodeficiencies (ESID) is a non-profit organization whose main objectives are to facilitate the exchange of ideas and information among doctors, nurses, biomedical investigators, patients and their families concerned with primary immunodeficiency diseases and also to promote research on causes, mechanisms and treatment of these disorders. ESID was established as an informal group in 1983 and became a society in 1994.
ESID has been striving to improve the knowledge in the field of Primary Immunodeficiency (PID) by encouraging research, developing educational programs and fostering cooperation among all those involved in the diagnosis, treatment and management of these diseases.
ESID is organized in 7 working parties – Inborn Errors, Clinical, Education, Genetics, Registry, ESID Juniors, PID Care in Development.
ESID has invested in several activities such as
ESID Biennial Congress
ESID Summer School
Endorsed activities
Awards and Grants
(...)Main EU files targeted
Neonatal screening for immunodeficiencis, initiative launched by IPOPI, ISNS and ESID aimed at exchanging knowledge and best practices on NBS for rare diseases. Its ultimate objective is to ensure all babies born in the EU can have equal access to NBS which can be a life-saving tool for conditions such as SCID
Address
Head Office
Mijnbouwstraat 23
Delft 2628RV
NETHERLANDS -
People
Total lobbyists declared
1
Employment time Lobbyists 25% 1 Lobbyists (Full time equivalent)
0.25
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
-
Categories
Category
IV - Think tanks, research and academic institutions
Subcategory
Academic institutions
-
Networking
Affiliation
https://ern-rita.org/
Member organisations
Affiliated with:
IPOPI - https://ipopi.org/
INGID - https://ingid.org/ -
Financial Data
Closed financial year
Jan 2020 - Dec 2020
Lobbying costs for closed financial year
37,500€
Other financial info
None declared
-
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
N/A
Communication activities
Campaign : Screen4rare
Other activities
None declared
Meetings
Meetings
None declared