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Overview
Lobbying Costs
125,000€
Financial year: Jan 2013 - Dec 2013
Lobbyists (Full time equivalent)
None declared
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
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Info
European Parkinson's Disease Association (EPDA)
EU Transparency Register
04778646924-03 First registered on 12 Oct 2011
Goals / Remit
The European Parkinson’s Disease Association (EPDA) is the only European Parkinson’s disease umbrella organisation. Founded in 1992, we are a non-political, non-religious and non-profit organisation. Representing national Parkinson’s organisations in 36 countries, we advocate for the rights and needs of more than 1.2 million people with Parkinson’s and their families across Europe.
What does the EPDA aim to do?
By working with our members – who represent the needs of individual people with Parkinson’s and their families at a national level – the EPDA aims to:
- positively influence Parkinson’s stakeholders to challenge existing mindsets,
- shift attitudes and remove the hurdles that prevent PwPs from receiving early and appropriate treatment as well as individualised care
- increase public and political awareness of Parkinson’s as a priority health challenge
- support the development of national Parkinson’s organisations throughout Europe
- help reduce stigma and remove discrimination against people with Parkinson’sMain EU files targeted
Address
Head Office
Northumberland Avenue
London WC2N 5BW
UNITED KINGDOM -
People
Total lobbyists declared
None declared
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 15 Jan 2025
Name Start date End Date Ms HEATHER CLARKE 07 Nov 2014 12 Dec 2014 Ms HEATHER CLARKE 23 Oct 2013 22 Oct 2014 Mrs Amanda Worpole 19 Mar 2013 16 Mar 2014 Mr David Tanoh 11 Jan 2013 09 Aug 2013 Ms HEATHER CLARKE 11 Oct 2012 06 Oct 2013 Mrs Silvia BOTTARO 20 Feb 2012 01 Nov 2012 Mrs Heather CLARKE 20 Feb 2012 01 Nov 2012 Complementary Information
None declared
Person in charge of EU relations
None declared
Person with legal responsibility
Ms Graham Lizzie (Director of Fundraising and Global Communications)
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
None declared
Member organisations
None declared
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Financial Data
Closed financial year
Jan 2013 - Dec 2013
Lobbying costs for closed financial year
125,000€
Other financial info
Please refer to the EPDA's audited accounts 2013 http://www.epda.eu.com/EasySiteWeb/GatewayLink.aspx?alId=28556
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EU Structures
Groups (European Commission)
None declared
Groups (European Parliament)
None declared
Communication activities
None declared
Other activities
None declared
Meetings
Meetings
None declared