Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2023 - Dec 2023
Lobbyists (Full time equivalent)
0.6 Fte (6)
Lobbyists with EP accreditation
0
High-level Commission meetings
4
Lobbying Costs over the years
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Info
Drugs for Neglected Diseases initiative (DNDi)
EU Transparency Register
66666589895-96 First registered on 18 Oct 2012
Goals / Remit
Founded in 2003 to address the needs of patients with the most neglected diseases, DNDi is a collaborative, patients’ needs-driven, not-for-profit drug R&D organization.
The vision of the organization is to improve the quality of life and the health of people suffering from neglected diseases by using an alternative model to develop drugs for these diseases and by ensuring equitable access to new and field-relevant health tools.
In this not-for-profit model, driven by the public sector, a variety of players collaborate to raise awareness of the need to research and develop drugs for those neglected diseases that fall outside the scope of market-driven R&D. They also build public responsibility and leadership in addressing the needs of these patients.Main EU files targeted
Advocacy of global policy related to neglected diseases; political leadership, sustainable financing, and sound public policies for R&D in neglected diseases; treatment development for neglected diseases; strengthening of research capacities in low- and middle-income countries.
Following and contributing to policies involved in shaping EDCTP2 and EDCTP3, Horizon H2020, Innovative Medicines Initiative (IMI2) and Product Development Partnership (PDP) forum and EU research funding policies.
Focus on EU commission and other key institutions to gather political support to develop a sustainable global framework for innovations of public health importanceAddress
Head Office
Chemin Camille-Vidart, 15
Geneva 1202
SWITZERLANDEU Office
Chemin Camille-Vidart, 15
Geneva 1202
SWITZERLANDWebsite
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People
Total lobbyists declared
6
Employment time Lobbyists 10% 6 Lobbyists (Full time equivalent)
0.6
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
3 DNDi staff members working in relation to EU policy. They are in the External Relations team (2) and in the Policy and Advocacy team (1). In total it amounts to 3 people dedicating 20% of their time to matters related to the EU.
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
Swiss Alliance against Neglected Tropical Diseases (SANTD)
https://santd.ch/
German NTD network
https://dntds.de/members-observers.html
Global health Hub but again
https://www.globalhealthhub.de/de/ueber-den-hub/mitglieder
WIPO
https://www.wipo.int/members/en/organizations.jsp?type=NGO_INTMember organisations
None declared
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Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2023 - Dec 2023
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
66,936,830€
Major funding types in closed year
Grants
Major contributions in closed year
Type Name Amount Contribution UK International Development 11,399,482€ Contribution German BMBF and BMZ through KfW 7,372,194€ Contribution Bill & Melinda Gates Foundation 8,258,924€ Grant H2020 and EDCTP 6,589,437€ Other financial info
None declared
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EU Structures
Groups (European Commission)
None declared
Groups (European Parliament)
N/A
Communication activities
Participation at EU conferences, Research and Innovation forums, EDCTP forums. Communications activities in close collaboration with EDCTP projects running at DNDi and their partners.
Other activities
Participation in EU conferences
Participation in EU consultations on EU funding programmes and EU policies
Meetings
Meetings
4 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.
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Date 28 Nov 2024 Location HERA Brussels Subject Development of MCM against climate related health threats DG Health Emergency Preparedness and Response Authority Attending - Laurent Muschel (Acting Director-General)
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Date 22 Apr 2024 Location Brussels Subject Support of the European Framework Programme for health research and innovation Cabinet Cabinet of Commissioner Iliana Ivanova Attending - Iliana Ivanova (Commissioner)
- Nelly Bruno (Cabinet member)
Other Lobbyists -
Date 01 Jul 2022 Location Brussels Subject Conversation with DNDi and GARDP on possible collaboration for DG Santé DG Health and Food Safety Attending - Sandra Gallina (Director-General)
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Date 14 Jan 2022 Location Virtual Subject HERA DG Research and Innovation Attending - Jean-Eric Paquet (Director-General)