Overview
Lobbying Costs
None declared
Financial year: Jan 2013 - Dec 2013
Lobbyists (Full time equivalent)
None declared
Lobbyists with EP accreditation
4
High-level Commission meetings
27
Lobbying Costs over the years
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Info
European Patients’ Forum (EPF)
EU Transparency Register
61911227368-75 First registered on 07 Dec 2011
Goals / Remit
The European Patients’ Forum is a not-for-profit, independent umbrella organisation of patients’ organisations active in the field of European public health and health advocacy.
EPF’s vision is that all patients with chronic and/ or lifelong conditions in the EU have access to high quality, patient-centred equitable health and social care.
Our mission is to ensure that the patients’ community drives policies and programmes that affect patients’ lives to bring changes empowering them to be equal citizens in the EU.
EPF helps to empower patients’ organisations through educational seminars, policy initiatives and projects. We coordinate best practice exchanges between patient organisations at European and national levels. Our programmes also help to strengthen their organisational and advocacy capacity.
EPF's goals as stated in the Strategic Plan 2014-2020 are as follows:
Goal 1: HEALTH LITERACY
To promote access for patients and their informal carers to information and education that enables them to make informed choices about their health.
Goal 2: HEALTHCARE ACCESS AND QUALITY
To contribute to improvements in health systems that enable equitable access to sustainable and high-quality healthcare designed and delivered to meet patients’ and informal carers’ needs at all levels of care, embracing innovation in all its forms.
Goal 3: PATIENTS’ INVOLVEMENT
To advance meaningful patient involvement in the development and implementation of health-related policies, programmes and projects in the EU.
Goal 4: PATIENTS' EMPOWERMENT
To promote the development and implementation of policies, strategies and healthcare services that empower patients to be involved in the decision-making and management of their condition according to their preference, whilst raising awareness about their rights and responsibilities.
Goal 5: SUSTAINABLE PATIENTS' ORGANISATIONS
To support the development, growth and capacity building of inclusive, effective, sustainable and representative patients’ organisations, and to foster cooperation and synergies between them.
Goal 6: NON DISCRIMINATION
To promote the development of EU and national policies that tackle discrimination faced by patients in health and social care as well as in domains like education and employment.
Our vision, core values, and strategic goals stated in our strategic plan inform EPF’s policy and programme work, external communications and collaboration and partnerships with health stakeholders. They are embedded in all activities we undertake and constitute EPF’s identity card. We outline our yearly objectives through an annual work plan.
Link to EPF Strategic Plan: http://www.eu-patient.eu/library/Strategic-Plan/
Link to EPF Annual Work plans: http://www.eu-patient.eu/library/Other-Material/Main EU files targeted
Address
Head Office
route de Thionville
Luxembourg L-2611
LUXEMBOURG -
People
Total lobbyists declared
None declared
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
4 accreditations were / are live (in bold) for the selected state of 02 Dec 2014
Name Start date End Date Yann HEYER 09 Sep 2023 06 Sep 2024 Estefania CALLEJAS DE LUCA 06 Jan 2024 03 Jan 2025 Claudia LOUATI 05 May 2023 04 May 2024 Anca TOMA 06 Sep 2023 05 Sep 2024 Milana Trucl 06 Sep 2023 05 Sep 2024 Julie SPONY 06 Sep 2023 05 Sep 2024 Ms Emma Kaisa Tuulikki IMMONEN 22 Sep 2022 18 Mar 2023 Mr Juan Jose FERNÁNDEZ ROMERO 07 Sep 2022 13 Aug 2023 Anca TOMA 07 Sep 2022 06 Sep 2023 Milana Trucl 07 Sep 2022 06 Sep 2023 Julie SPONY 07 Sep 2022 06 Sep 2023 Ms Katie Gallagher 23 Nov 2019 21 Nov 2020 Ms Nicola BEDLINGTON 21 Nov 2019 21 Nov 2020 Mr Usman KHAN 07 Sep 2019 05 Sep 2020 Ms Emma Kaisa Tuulikki Immonen-Charalambous 29 Aug 2019 29 Aug 2020 Mr Lyudmil NINOV 29 Aug 2019 29 Aug 2020 Konstantinos Aligiannis 29 Aug 2019 19 Jan 2020 Mr Julien RICHARD 08 Feb 2019 29 Aug 2019 Ms Emily BOWLES 07 Feb 2019 01 Mar 2020 Ms Katie Gallagher 08 Jan 2019 23 Nov 2019 Ms Nicola BEDLINGTON 07 Dec 2018 21 Nov 2019 Ms Valentina STRAMMIELLO 18 May 2018 18 May 2019 Mr Lyudmil NINOV 17 May 2018 17 May 2019 Ms Elena Balestra 09 May 2018 09 May 2019 Ms Emma Kaisa Tuulikki Immonen-Charalambous 08 May 2018 01 Jun 2019 Konstantinos Aligiannis 08 May 2018 01 Jun 2019 Ms Katie Gallagher 03 Jan 2018 15 Dec 2018 Ms Nicola BEDLINGTON 25 Nov 2017 24 Nov 2018 Ms Camille Bullot 16 Jun 2017 13 Jun 2018 Ms Elena Balestra 05 May 2017 04 May 2018 Ms Emma Kaisa Tuulikki Immonen-Charalambous 25 Apr 2017 20 Apr 2018 Konstantinos Aligiannis 25 Apr 2017 20 Apr 2018 Mr Laurent Louette 21 Feb 2017 07 Feb 2018 Ms Katie Gallagher 09 Dec 2016 09 Dec 2017 Ms Camille Bullot 23 Jun 2016 16 Jun 2017 Ms Emma Kaisa Tuulikki Immonen-Charalambous 20 Feb 2016 19 Feb 2017 Mr Laurent Louette 13 Feb 2016 12 Feb 2017 Ms Laurène Souchet 11 Feb 2016 14 Dec 2016 Ms Emma Kaisa Tuulikki Immonen-Charalambous 07 Mar 2015 20 Feb 2016 Ms Cynthia Bonsignore 11 Feb 2015 10 Feb 2016 Ms Laurène Souchet 11 Feb 2015 05 Feb 2016 Ms Camille Bullot 01 Oct 2014 29 Sep 2015 Ms Emma Kaisa Tuulikki Immonen-Charalambous 07 Mar 2014 06 Mar 2015 Ms Cynthia Bonsignore 19 Feb 2014 12 Feb 2015 Ms Laurène Souchet 19 Feb 2014 12 Feb 2015 Complementary Information
None declared
Person in charge of EU relations
None declared
Person with legal responsibility
Ms Nicola Bedlington (Director)
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
None declared
Member organisations
None declared
-
Financial Data
Closed financial year
Jan 2013 - Dec 2013
Lobbying costs for closed financial year
None declared
EU grant income for closed financial year
568,488 €
Other financial info
Our financial information is published yearly on our website, and in EPF annual report available from EPF website.
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EU Structures
Groups (European Commission)
None declared
Groups (European Parliament)
None declared
Communication activities
None declared
Other activities
None declared
- Meetings
Meetings
27 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 06 Mar 2023 Location Brussels Subject Meeting to discuss the reform of EU pharmaceutical legislation Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Karolina Herbout-Borczak (Cabinet member)
- Stella Kyriakides (Commissioner)
Other Lobbyists -
Date 06 Mar 2023 Location Brussels Subject Pharma Strategy Cabinet Cabinet of Vice-President Margaritis Schinas Portfolio Promoting the European Way of Life Attending - Margaritis Schinas (Vice-President)
- Maria Luisa Llano Cardenal (Cabinet member)
Other Lobbyists -
Date 21 Sep 2022 Location Brussels Subject Rare diseases Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
- Ines Prainsack (Cabinet member)
Other Lobbyists -
Date 25 May 2022 Location Bruxelles - Virtual Subject VTC meeting - European Health Data Space – EPF Congress 2022 Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Ralf Kuhne (Cabinet member)
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Date 25 Nov 2021 Location Webex Subject Follow up to Cssr Kyriakides’ meeting with CSOs on 25/10/2021 on civil society funding through EU4Health Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Giorgios Rossides (Cabinet member)
Other Lobbyists -
Date 25 Oct 2021 Location Brussels Subject VTC Meeting: EU4Health Work Programme 2022 and operating grants. Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
Other Lobbyists -
Date 30 Jul 2021 Location Virtual meeting Subject Meeting with civil society representatives regarding the EU4health programme. Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
Other Lobbyists -
Date 16 Jun 2021 Location online Subject Supply chains for medicines Cabinet Cabinet of Vice-President Margaritis Schinas Portfolio Promoting the European Way of Life Attending - Maria Luisa Llano Cardenal (Cabinet member)
- Margaritis Schinas (Vice-President)
Other Lobbyists - SANOFI
- Phamaceutical Group of the European Union
- MEDICINES FOR EUROPE
- Medichem, S.A.
- Leuphana Universität Lüneburg
- European Healthcare Distribution Association
- The European Association of Hospital Pharmacists
- Fresenius Kabi Deutschland GmbH
- European Chemical Industry Council
- European Federation of Pharmaceutical Industries and Associations
- Bureau Européen des Unions de Consommateurs
- Novo Nordisk A/S
- Pfizer Inc.
- Teva Pharmaceuticals Europe BV
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Date 16 Feb 2021 Location Videoconference Subject Pact for Skills roundtable with the representatives of the health sector. Cabinet Cabinet of Commissioner Nicolas Schmit Portfolio Jobs and Social Rights Attending - Anouk Faber (Cabinet member)
- Nicolas Schmit (Commissioner)
- Christoph Nerlich (Cabinet member)
Other Lobbyists -
Date 16 Feb 2021 Location Videoconference Subject Pact for Skills roundtable with the representatives of the health sector Cabinet Cabinet of Commissioner Thierry Breton Portfolio Internal Market Attending - Eszter Batta (Cabinet member)
- Agnieszka Skonieczna (Cabinet member)
- Thierry Breton (Commissioner)
Other Lobbyists -
Date 26 Jun 2020 Location Brussels Subject VC meeting: Exchange of views on the forthcoming Pharmaceutical Strategy Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 29 May 2020 Location Brussels Subject Video call with Pharmaceutical Industrial Associations, the European Medicines Agency and the European Centre for Disease Prevention and Control, to discuss Possible shortages of medicines and medical devices for the Covid-19 outbreak Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
Other Lobbyists - MedTech Europe
- European Coordination Committee of the Radiological, Electromedical and healthcare IT Industry
- Association of the European Self-Care Industry
- MEDICINES FOR EUROPE
- Vaccines Europe
- European Confederation of Pharmaceutical Entrepreneurs
- European Federation of Pharmaceutical Industries and Associations
- European Public Health Alliance
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Date 07 May 2020 Location Brussels Subject VC meeting on EU's Cancer Plan and challenges of patients with chronic diseases during COVID-19 Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 07 Jan 2020 Location Brussels Subject Discussion on cancer Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
- Tove Ernst (Cabinet member)
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Date 13 Nov 2019 Location Brussels Subject Patient involvement as a path towards more effective health systems Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Alina Timofte (Cabinet member)
- Vytenis Andriukaitis (Commissioner)
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Date 12 Nov 2019 Location Brussels Subject participation in high level forum DG Health and Food Safety Attending - Anne Bucher (Director-General)
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Date 11 Nov 2019 Location Brussels Subject To give a speech at the give to contribute to the opening Plenary Session of EPF Congress “Advancing Meaningful Patient Involvement – A path to effective health systems”. DG Health and Food Safety Attending - Anne Bucher (Director-General)
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Date 09 Oct 2019 Location Brussels Subject Discussion on the future of the EPF cooperation with the Commission Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Vytenis Andriukaitis (Commissioner)
- Inga Preikšienė (Cabinet member)
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Date 28 Mar 2019 Location Brussels Subject discussion on EMA’s strong commitment to patient engagement DG Health and Food Safety Attending - Anne Bucher (Director-General)
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Date 23 May 2018 Location brussels Subject Discussion about collaboration with Sante DG Health and Food Safety Attending - Xavier Prats Monné (Director-General)
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Date 15 May 2018 Location Brussels Subject HTA Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Vytenis Andriukaitis (Commissioner)
- Annika Nowak (Cabinet member)
Other Lobbyists - Bureau Européen des Unions de Consommateurs
- International Diabetes Federation European Region
- Stichting Health Action International
- EUROPEAN ORGANISATION FOR RARE DISEASES
- ASDM Consulting
- European Public Health Alliance
- European Cancer Patient Coalition
- European Federation of Allergy and Airways Diseases Patients' Associations
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Date 17 Jan 2018 Location Brussels Subject Discussion on the future cooperation with DG SANTE DG Health and Food Safety Attending - Xavier Prats Monné (Director-General)
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Date 12 May 2017 Location Brussels Subject Sustainable Development Goals, EPF ‘s campaign on this issue and the Social Pillar Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Paula Duarte Gaspar (Cabinet member)
- Vytenis Andriukaitis (Commissioner)
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Date 27 Sep 2016 Location Brussels Subject To discuss different issues: public health programme, chronic diseases DG Health and Food Safety Attending - Xavier Prats Monné (Director-General)
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Date 25 Apr 2016 Location Brussels Subject Cooperation in the area of acute care Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Annika Nowak (Cabinet member)
Other Lobbyists -
Date 28 Jan 2015 Location Brussels Subject Health system performance assesment Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Vytenis Andriukaitis (Commissioner)
- Annika Nowak (Cabinet member)
- Meetings