National Patients' Organisation - Bulgaria

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No longer registered as of 18 Mar 2023 - Registration as it was on 13 May 2022
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Overview

Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

Lobbying Costs

None declared

Financial year: Jan 2020 - Dec 2020

Lobbyists (Full time equivalent)

3 Fte (7)

Lobbyists with EP accreditation

0

High-level Commission meetings

0

Lobbying Costs over the years

  • Info

    National Patients' Organisation - Bulgaria   (NPO)

    EU Transparency Register

    499828110213-28 First registered on 29 Nov 2012

    Goals / Remit

    Our vision for the future is a patient-centered healthcare system where patients’ rights are developed and affirmed. We also envision equal access to high quality healthcare for all citizens.

    We aim at affirmation of strong united patients’ movement on regional and national level with a visible participation on every level of the healthcare system. We nurture empowered patient community that is seen as key factor by all stakeholders in public systems at the development of health policies. We strive for patient and stakeholder awareness about the rights and the obligations of the patients.

    NPO has a strong profile in advocacy and institutional collaboration as it leads the Secretariat of the permanent consultative body to the Council of Ministers in Bulgaria.

    The main objectives set out in the statutes of the National Patients’ Organization are meant to carry out activities in interest of the society.

    Main EU files targeted

    - European Semester
    - Horizon 2020
    - EU health policies
    - Access to healthcare

    Address

    Head Office
    Chataldzha Str. 76 floor 5
    Sofia 1527
    BULGARIA
    EU Office
    Chataldzha Str. 76 floor 5
    Sofia 1527
    BULGARIA

    Website

  • People

    Total lobbyists declared

    7

    Employment timeLobbyists
    100%1
    75%1
    25%5

    Lobbyists (Full time equivalent)

    3

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    0 accreditations were / are live (in bold) for the selected state of 29 Mar 2024

    Name Start date End Date
    Mr Stanimir Hasardzhiev 26 Jan 2017 25 Jan 2018
    Mr Stanimir Hasardzhiev 11 Jul 2015 09 Jul 2016
    Mr Stanimir Hasardzhiev 20 May 2014 05 Jun 2015
    Mr Stanimir Hasardzhiev 06 Dec 2012 30 Nov 2013

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    - As from March 2012 National Patients’ Organization is member of the European Patients' Forum.
    The European Patients’ Forum (EPF) was founded in 2003 to become the collective patients’ voice at EU level, manifesting the solidarity, power and unity of the EU patients’ movement. EPF currently represents 55 member organisations - which are chronic disease specific patient organisations working at European level, and national coalitions of patients organisations. EPF reflects the voice of an estimated 150 million patients affected by various diseases throughout Europe.EPF’s vision for the future is high quality, patient-centred, equitable healthcare throughout the European Union.
    Official webpage of EPF: https://www.eu-patient.eu/

    - National Patients' Organisation is co-founder, together with European Patients' Forum, of PACT - Patiients' Access Partnership: The Patient Access Partnership is a patient-led multi-stakeholder network bringing together patients, the medical and public health community, industry and the European and member states policy makers and institutions, in order to develop and move forward on innovative solutions to reduce inequities in access to quality healthcare in the European Union.
    The Partnership emerged from the political momentum after the adoption of the Vilnius Declaration Call for Action - "Sustainable Healthcare System for Inclusive Growth in Europe", affirming:
    "To ensure universal access to high quality people-centered health services" and for "a partnership approach between all stakeholders in the health sector at national and European levels... to improve equity of access to healthcare".
    Official web page of PACT: http://www.eupatientaccess.eu/page.php?i_id=21

    - Since March 2012 National Patients’ Organization is member of the International Alliance of Patients’ Organizations.
    IAPO is a unique global alliance representing patients of all nations across all disease areas and promoting patient-centred healthcare across the world. IAPO has 276 member organizations from 71 countries representing 50 disease areas. Our vision is to see patients placed at the centre of healthcare. Our mission is to help build patient-centred healthcare worldwide.
    Official webpage of IAPO:
    https://www.iapo.org.uk/

    Member organisations

    The National Patients' Organization (NPO) is the largest union of patient organizations in Bulgaria comprising more than 80 disease-specific member organizations, including healthy ageing management chronic conditions such as cardio-vascular diseases, diabetes, cancer etc. NPO is represented through its legally endorsed membership in all 28 regions in Bulgaria. The ideology and high ethical standards, ingrained in the values of the organization, triggered a rippling effect in the patients’ community. Since its inception in 2010, NPO has been annually granted the status of a nationally representative patients’ organization by the Ministry of Healthcare.
    List of members:
    Foundation “Movement of the Bulgarian mothers”
    Field: child protection

    “Multiple Sclerosis Society – Bulgaria” Foundation
    Field: multiple sclerosis

    Foundation of Patients with Chronic Kidney Disease and Haemodialysis in Bulgaria
    Field: chronic kidney disease

    Foundation “I”
    Field: HIV/AIDS

    Association of Patients with Cancer and Friends
    Field: cancer

    Bulgarian Association of Victims of Car Accidents
    Field: injuries during car accidents

    Association of People with Bladder-related Problems
    Field: bladder infections

    Association of the Patients with Facial Anomalies and Their Parents (ALA)
    Field: facial anomalies

    Bulgarian Transplant Union
    Field: transplant patients

    Bulgarian Association Lymphoma
    Field: lymphoma

    National Association for Fighting Hepatitis
    Field: hepatitis

    HepActive
    Field: hepatitis

    National Association for Prevention of Cervical Cancer
    Field: cervical cancer

    Bulgarian Haemophilia Association
    Field: haemophilia

    “Open Interaction” Association
    Field: hearing impairment

    National Association of Patients with Chronic Myeloid Leukemia
    Field: chronic myeloid leukemia

    Association “Life in Dignity for Patients with Parkinson’s Disease in Bulgaria”
    Field: Parkinson’s disease

    Association “Children with oncohematologic diseases”
    Field: oncohematologic diseases

    Association of Patients with Rheumatoid Arthritis
    Field: rheumatoid Arthritis

    Patient Association “Glaucoma”
    Field: glaucoma

    Hope-Sofia
    Field: addiction

    Association of Parents of Children with Kidney Diseases
    Field: kidney diseases

    “Hearth” Association
    Field: cardiovascular diseases

    Bulgarian Society of Patients with Pulmonary Hypertension
    Field: pulmonary hypertension

    Association “VIOM”
    Field: thyroid diseases

    Association of Parents with Children with Down Syndrome
    Field: Down syndrome

    National Association “Diabetes, Prediabetes and Metabolic Syndrome”
    Field: diabetes

    “Association Genome”
    Field: patients with genetic and inborne conditions

    Association of Patients with Gastrointestinal Stromal Tumour in Bulgaria
    Field: Gastrointestinal Stromal Tumour

    Foundation “Compassion Alzheimer Bulgaria”
    Field: Alzheimer

    NGO “ARTRA”
    Field: patients’ rights

    Association of Women with Cancer and Their Supporters “I Have Strength to Fight”
    Field: cancer

    NGO “Integration”
    Field: sensors, motor and mental disorders

    “2002 Hopes” Association
    Field: patients’ rights

    “Thirst for Life” Association
    Field: HIV/AIDS prevention; risk groups

    NGO “Health and Morals”
    Field: patient empowerment

    Association of Women with Cancer and Their Supporters – Burgas
    Field: cancer

    Association “Child’s Heart – Dobritch”
    Field: cardiovascular diseases

    Foundation “Tromboflebitis Patients in Action”
    Field: tromboflebitis

    Association “Cancer Patients and Friends” – Burgas
    Field: cancer

    NGO “Smile”
    Field: development opportunities, education and social integration

    National Association of Children and Youths with Diabetes”
    Field: diabetes

    Association “Patient Network”
    Field: patients’ rights and education

    Association “Tacitus”
    Field: autism and mental disorders

    Association “Autism Today”
    Field: autism

    Foundation “Step for the Invisible Children of Bulgaria”
    Field: autism

    Association “ARZ Solidarity”
    Field: Addiction (substances and hazard)

    Patients with Cancer and Friends – Gabrovo
    Field: cancer

    Link to the full list of members: http://npo.bg/members/

  • Financial Data

    Interests represented

    Does not represent commercial interests

    Closed financial year

    Jan 2020 - Dec 2020

    Lobbying costs for closed financial year

    Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

    Total organisational budget in closed year

    312,002€

    Major funding types in closed year

    Donations, Grants

    Major contributions in closed year

    None declared

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    Social economy#Children's rights#Anti-corruption#Cancer#Demographic challenges, family-work balance and youth transition#Anti-racism and diversity#Green new deal#Rural, mountainous and remote areas (RUMRA) and smart villages#Disability

    Communication activities

    • EC representatives, Patients, MPs and ministers agree on the need to make healthcare a priority for the whole society
    More info at:
    https://npo.bg/%d0%bf%d0%b0%d1%86%d0%b8%d0%b5%d0%bd%d1%82%d0%b8-%d0%b4%d0%b5%d0%bf%d1%83%d1%82%d0%b0%d1%82%d0%b8-%d0%b8-%d0%bc%d0%b8%d0%bd%d0%b8%d1%81%d1%82%d1%80%d0%b8-%d1%81%d0%b5-%d0%be%d0%b1%d0%b5%d0%b4%d0%b8/

    • Free consultations for "pediatric" vaccines and for patients with COVID-19 on tel. 0800 14 515 until the end of March 2022.
    More info at:
    https://npo.bg/consultations/

    •Health experts and patients commented on the priorities in health prevention and disease prevention
    More info at:
    https://npo.bg/mladeji_v_deistvie/

    • Експерти: Пациентските организации да са конструктивни в диалога за качествено здраве
    More info at:
    https://npo.bg/%d0%b5%d0%ba%d1%81%d0%bf%d0%b5%d1%80%d1%82%d0%b8-%d0%bf%d0%b0%d1%86%d0%b8%d0%b5%d0%bd%d1%82%d1%81%d0%ba%d0%b8%d1%82%d0%b5-%d0%be%d1%80%d0%b3%d0%b0%d0%bd%d0%b8%d0%b7%d0%b0%d1%86%d0%b8%d0%b8-%d0%b4/

    • Dr. Stanimir Hasardjiev: "For God's sake, brothers, get vaccinated!"
    https://npo.bg/%d0%b4-%d1%80-%d1%81%d1%82%d0%b0%d0%bd%d0%b8%d0%bc%d0%b8%d1%80-%d1%85%d0%b0%d1%81%d1%8a%d1%80%d0%b4%d0%b6%d0%b8%d0%b5%d0%b2-%d0%b7%d0%b0-%d0%b1%d0%be%d0%b3%d0%b0-%d0%b1%d1%80%d0%b0%d1%82%d1%8f/

    • 10,000 Bulgarians consulted on the hot COVID phone of the National Patient Organization in the last 14 months
    More info at:
    https://npo.bg/10-000-%d0%b1%d1%8a%d0%bb%d0%b3%d0%b0%d1%80%d0%b8-%d1%81%d0%b5-%d0%ba%d0%be%d0%bd%d1%81%d1%83%d0%bb%d1%82%d0%b8%d1%80%d0%b0%d1%85%d0%b0-%d0%bd%d0%b0-%d0%b3%d0%be%d1%80%d0%b5%d1%89%d0%b8%d1%8f-cov/

    • A civic debate discussed the state of the health system between the pandemic and reforms
    More info at:
    https://npo.bg/%d0%bf%d1%80%d0%be%d0%b2%d0%b5%d0%b4%d0%b5-%d1%81%d0%b5-%d0%be%d0%b1%d1%89%d0%b5%d1%81%d1%82%d0%b2%d0%b5%d0%bd-%d0%b4%d0%b5%d0%b1%d0%b0%d1%82-%d0%be%d1%87%d0%b0%d0%ba%d0%b2%d0%b0%d0%bd%d0%b8/

    •Regional study on access to health care in the context of COVID-19
    More info at:
    https://npo.bg/%d0%bd%d0%bf%d0%be-%d0%b8%d0%bd%d0%b8%d1%86%d0%b8%d0%b8%d1%80%d0%b0-%d0%bf%d1%80%d0%be%d1%83%d1%87%d0%b2%d0%b0%d0%bd%d0%b5-%d0%b4%d0%be%d1%81%d1%82%d1%8a%d0%bf-%d0%b4%d0%be-%d0%b7%d0%b4%d1%80%d0%b0/

    •Free research on socially significant diseases during the exhibition & Bulmedica / Buldental / Derma Aesthetics 2021
    More info at:
    https://npo.bg/%d0%b1%d0%b5%d0%b7%d0%bf%d0%bb%d0%b0%d1%82%d0%bd%d0%b8-%d0%b8%d0%b7%d1%81%d0%bb%d0%b5%d0%b4%d0%b2%d0%b0%d0%bd%d0%b8%d1%8f-%d0%b7%d0%b0-%d1%81%d0%be%d1%86%d0%b8%d0%b0%d0%bb%d0%bd%d0%be%d0%b7%d0%bd/

    Reports and news about the activities of National Patients' Organisation through the years could be found on our official webpage:
    https://npo.bg/about-us/annual-reports/
    https://npo.bg/category/topical/

    Other activities

    - Charperson of NPO - Dr. Stanimir Hasardzhiev, participated as speaker at: Third forum of the Scientific Panel for Health1 'Enabling health equality in Europe – the role of health research’ . Charlemagne building, rue de la Loi, 170 1040 Brussels, Belgium Monday 6 May 2019.

    - Charperson of NPO - Dr. Stanimir Hasardzhiev, participated at: Workshop on Health Data to Empower Patients in the European Union, organised by the European Commission and hosted by the Dutch Ministry of Health, Welfare and Sports, and the Dutch Patient Federation. The Workshop will take place on Wednesday, 27 November 2019 at the following venue: 7AM, Buitenhof 47, 2513 AH, The Hague.

  • Meetings

    Meetings

    None declared

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